Thursday, June 11, 2009

No Longer A Virgin

Scott is no longer has virgin skin. He had his tattoo today. OUCH!!! I can't believe how many people show interest in Scott's story. He is truly a walking miracle but, others call him superman.
The stenciling before . I asked Scott if he was feeling a little like Clark Kent. He said it wasn't to painful yet.
The finished product. So many people called Scott Superman that he thought he should get a superman tattoo. He didn't want it to look like a kids tattoo that you would get out of the bubblegum machine so we found a picture that made it look like it was ripping through his arm.
Tim from Old Ghost Tattoo did a great job. Scott is pleased with his tattoo. "You rock Tim"After Scott's tattoo Tim rang the virgin bell.

Tuesday, June 09, 2009

Doctors, Doctors And More Doctors

Scott had an appt. with Walkaide yesterday. The walkaide is an electrical stimulate that helps remind your foot to pick itself up. Because of the electrical running through the body Scott needs to be clearance from his neurologist due to a risk of seizures. Have I mentioned Scott has not had a seizure post op surgery.

Today Scott has an appointment to see about getting his AFO adjusted to help with walking. Scott also called me today to tell me Dr. Nick wants to start chemo on Thursday. It took the wind out of both our sails. I think we both knew it was coming but, seemed like it came out of nowhere. Of course I am a wreck and Scott was to begin it so he will be done with it.

Monday, June 08, 2009

First Outing

June is full of Birthday's for us. This weekend was Dr. C's, Jackie and Matt's Birthday. For Matt's birthday he chose a movie and dinner. It was our first outing since Scott's surgery. We saw Hangover - funny movie but, not for kids and went to Duffy's for dinner.
The birthday fairy delivered Cold Stone Cupcakes to Duffy's before the movie so Matt would be surprised after dinner.
Sunday Scott and I thought about Church but, didn't make it that far maybe next weekend. I cleaned and did laundry. I don't know how we have so much laundry from 2 people.

Milo keeps going to the back of the waterfall and barking. I thought Scott's squirrel was in there. We had Skylar over for a sleep over and swim. I opened the door to the waterfall and a possum laid there looking at me. I got the water hose to try and get her out and she started running and so did her babies. I felt bad that she had babies so I closed the door and hoped she would move during the night. Milo wanted to go out that night and he was barking so I went out to see what he was barking at, he had a baby cornered. I chased him back in the house and hoped the mommy wasn't to far away. I got up in the morning opened the door to the waterfall and there was one baby. I shut the door and hoped the mommy would come back for it that night. I got up Sunday morning opened the door again to the waterfall and no baby.
I heard Milo barking went outside and Scott's squirrel came home to be fed. Damn wildlife was everywhere. Guess it doesn't matter how close you live to the beach.

Tuesday, June 02, 2009

Patient Update

Scott hasn't had a seizure since his surgery. His headaches have been minimal, nothing two Tylenol can't handle. Friday night we had friends from Georgia on their way to West Palm Beach stop to spend the night. We visited until about 3:00 on Saturday and then they headed to their destination.

Saturday Scott got up to get dressed and brush his teeth and his left leg was bending and his foot was perfectly straight. Sunday he had a difficult time walking but, his leg was still bending and that leg has not bent in a year and a half.

Things seem to be going well. I am still trying to figure out how I balanced a job and a family.

Friday, May 29, 2009

Thanks so Much

Hey, it's me the patient. I want to thank everyone who gave support in this very trying time for my family. The love notes sent to me while I was sick meant more then words could describe, that I promise. when you were as sick as I was friends and family are the shoulders you need to stand on until you feel better and although I have a long road of recovery in front of me, it felt great to see everyone standing up beside and supporting the most important person in my life, my wife. we both needed people there and I am so impressed with all of you who took the time to show support for not only me, but her. I will not forget your kindness, and friendship. My wife is my world and means everything to me, without her I truly feel I would not have made it through this dark time. So once again thank all of you for the showing of support, it really blew me away. please do stay in contact and continue to follow my progress through the blog or drop me an email anytime.- szech@cfl.rr.com

Thursday, May 28, 2009

Weigh In

I brought out the weight scales to see how much Scott weighs - I was thrilled to see 156. He is eating really well. I made a large pan of sausage gravy, to make it easier for him to warm in the microwave, I divided it into smaller bowls . He loves biscuits and gravy for breakfast and it is the easiest thing for me to make.

I made spareribs, salad and bake potatoes for dinner and he cleaned his plate. He even opted for an rice krispie treat for dessert. In the morning if he is awake at 4:30 which he usually is, he drinks an Ensure and a apple juice.

I try to keep a few things prepared in the refrigerator so he has a choice of what he would like to eat. I don't want him to get bored with one thing. It also makes it easier for me.

Through all this is has made me want to be more attentive to people that are ill. How even if it is a one or two meals a week - how much easier it will be for them to have an already prepared meal. So I will be asking my pastor who I can help.

Wednesday, May 27, 2009

Sorry To Panic You

A couple of you thought the Tail Spin of Events was recent. It was what started all this. I didn't mean to panic people.. Sorry

Tuesday, May 26, 2009

Taking A Break

This weekend I decided to take a break from the outside world. I choose not to answer my telephone, not to open my computer, I didn't even open my mail . I did do a trip to the grocery store.

Scott and I spent the weekend watching Jon & Kate plus 8. Oh lord, I don't know how they do it. We had never seen an episode. I think we are caught up enough on the last 4 seasons. I cooked and cleaned and cooked and cleaned. I have meals prepared ahead of time so Scott can just pop stuff in the microwave and it still be homemade. He loves my biscuits and gravy and that is oh so easy to make.

Scott seem to be doing OK I think weird neurological healing is causing crazy things with his left side. I spoke with Dr. Nicks nurse this morning outside of a few blood tests we have the go ahead on chemo : (

Friday, May 22, 2009

Events That Threw Us Into A Tailspin

I am asumming that when Scott woke up at 3:00 am on the morning of April 23, he was disorientated from all the swelling in the brain. When Scott got to the foot of the bed he collapsed. The sound was a horrendous. I jumped out of bed and Scott was laying on his stomach, which means he fell from a standing position forward.
Blood was coming from his mouth and when I rolled him over his eyes were open but, he was dazed, non responsive and he had started to posture. I picked him up and put him on the bed and began to pack for a trip to MD Anderson. Something kept telling me not to put Scott in the car and drive to Orlando. I called 911 to take him to Holmes and thought once they checked him out there then I would drive him to Orlando.

I never imagined the seriousness of his condition. They took a CT scan and the emergency room doctor came in with the results. He looked at me and said I am not going to sugar coat it for you. The swelling in the brain had began to invade the other side of the brain, the mid line shift had shifted 15 mm, there was bleeding on the brain and the spinal fluid had began to collect on top of the brain. Scott was going to need emergency brain surgery. Scott had a horrible headache and I asked if they could give him something for his headache and something to calm him down.
I don't even know the series of phone calls I made. I remember calling Aaron, Scott's best friend in Jupiter, my mom and Brandi. Brandi showed up in minutes. I saw Tex from (Texas Roadhouse) walk by the room , his son is an ER doctor. I remember telling him his son wasn't on call today and he said he was there to see me. Confused, I asked him how he knew I was there and he said my mother had called the church. Then walked in Dr. Alfant, he had left his office to come by to see if I needed anything and to give me a hug. Then it seemed like my mom, my sister and Aaron had just appeared in the room.

They began to bring in Mannitol, it is a sugar alcohol solution that reduces brain swelling. I said to the nurse that I thought Mannitol had to be given over a three day period. The nurse said not in a situation like this. The Mannitol was given within an hour and a half. They asked Scott how his headache was, it was no better. So they administered another glass jar of the Mannitol.

The neuro surgeon on call is the best in Brevard County. He walked in and said that Scott was going to die. He said, Astrocytoma patients live about 15 years and Scott was at his 15 year mark. He said , we can do the surgery but he doesn't even know if Scott would survive it. If he does survive then we could be right back where we are in four days, Scott could end up paralyzed or blind. Scott had heard every word and began to cry. I gave the surgeon Dr. Nicks cell phone number and asked him to call him. The odds were against us. I think I was in a state of shock and I was faced with a decision that could end or possibly change the rest of Scott's life. I began to wonder if I was being selfish in wanting to keep Scott here, what would be his quality of life, did I want him to suffer more chemo treatments etc...I walked out of the room broke down. I didn't feel as those things were going to be okay but, I didn't want Scott to be scared, so I told him he was going to be fine.
I then looked at Scott's friend Aaron, what do I do? Aaron stood over Scott and took his hand - I don't know what was said all I know is Scott said "surgery". I then stepped outside the room to call Dr. Nick on his cell phone. I asked him what to do. I told him what the surgeon said and Dr. Nick said "do the surgery". I told the surgeon we would go ahead with surgery. They brought all the papers in for me to sign but, before I signed them I looked at Aaron one more time and he nodded yes. It seemed like seconds after the papers were signed that Scott was taken to the pre-op surgery room. The nurse from the ER came up with tears in her eyes gave me a hug. As they took Scott to surgery, they pointed to a hall way at the end of that hall way was where the surgical waiting room was. I looked at it, the more I walked the longer it got. I remember sitting down in the hallway and crying. A nice lady walked by and asked me if she could give me tissues. A social worker asked me if she could call someone for me. My friends and family was there - but, I felt so alone. I looked up and Michelle, Karen and Doreen seem to just appear. After being in the hallway for awhile, I decided to go in the waiting room and wait. I wanted to be with Aaron because that was the closest I felt to Scott.

After the surgery Dr. T. came in and said he had removed as much tumor as he could. Scott wasn't on a ventilator , he was making swallowing noises and let's see if he wakes up. I had received a phone call on my cell phone from Tex giving me Scott's room number, his son had followed Scott through the computer and was relaying information to him. We all stayed at the hospital until Scott was out of recovery and taken to his room in SICU. I wanted everyone that had stayed the duration of the long emotionally and physically day be able to see Scott. It was hard for me to leave that night but, I knew there was nothing I could do there and they were not budging on the visiting hours.

Thursday, May 21, 2009

Post Op Update

We saw the surgeon today. The speck in the brain is metal. If Scott were to have an MRI it would at like a swizzle stick in the brain. MRI's are out for now and the future. This worries me because MRI's are a way of showing progression and regression in this disease. So Dr. Nick is going to have to convince me CT's are OK.
The surgeon said that Scott has exceeded his expectations. He was thrilled to see Scott walking with a cane. I told him while I was trying to comprehend everything I was watching his body language and I didn't think he wanted to operate on Scott and he said he didn't. He didn't have any hope. I thanked him for doing the surgery. He apologized for the metal that was in there but, I told him it was a small price to pay for saving Scott's life.
Dr. Nick said that after reviewing the post op CT scan that there is a mild hemorrhage and we wouldn't be able to began the Avastain for now. The Avastain can cause hemorrhaging, so if there is already mild hemorrhaging it will only progress. Dr. Nick has a new game plan and we are waiting to hear from the nurse. It still involves chemotherapy.

Wednesday, May 20, 2009

Two Steps Forward One Step Back

Our appointment with Dr. Nick went great. Scott and I agreed because of the walking it would be a good idea for him to be in his wheelchair. When Dr. Nick walked in he assumed Scott could not walk so when Scott stood from his wheelchair and walked across the room independently, Dr. Nick's face lit up. He told Scott how great he looked and was over all amazed. The cause of Scott's domino effect was just that a domino effect from small things that added up after a period of time. We are still going to go with our same game plan as before with the Avastin , Sorafenib and add a special cocktail of drugs along the way. Scott has gained 6 more lbs and he hasn't been home a week. Dr. Nick agreed that eventually the brain surgery had to be done, to help relax the brain. He was sorry that it was done under the circumstances it was. But, is pleased with the results. Dr. Nick wants a base line MRI and we will go from there.

We had an appt. for a MRI today and they thought as a safety precaution that a CT scan should be done first. The CT Scan shows by the skull cage a speck of metal. The metal has to be non ferrous or by placing Scott in an MRI can cause the metal to move slicing through the brain. The radiologist is trying to reach the surgeon. So we will have to wait......

Monday, May 18, 2009

Beginning Stages of Recovery

Scott did really well this weekend. He spendt most of the weekend, resting, relaxing and enjoying being home. He is doing great with the use of his quad cane and seems to have the wheelchair mastered. Every movement just has to be slow. I am anxious to get the bench in for the shower I ordered, I think that will make it allot easier on showering.
I premade meals so he could have yummy food while I am at work. Before I left work this morning, I placed them in the oven to keep them warm. I just hope the heat doesn't dry them out. Scott was up this morning at 4:30 so I brought him an Ensure to drink. I have no complaints, he's a great patient and a great husband. Sunday he treated Michelle and I to a facial at Essentials. We had mimosa's while waiting for our esthetician. It was a little piece of heaven.
Milo has become very protective of me and every chance he gets he weasels his way in between us and places his paw on my chest. If Scott reaches over to touch me Milo takes his paw and tries to remove Scott's hand.
The nurse from Sea Pines will come today to assess Scott and to set up physical therapy. We have an appointment Wednesday with Dr. Nick and an appointment sometime this week with Dr. T. It is going to be a busy crazy week.

Saturday, May 16, 2009

Baby I'm Coming Home

I brought Scott home today. I wheeled him in the house and went back out to get his cane and he had already wheeled himself in the kitchen. I had Joe put in an under the counter glass front beverage cooler so Scott would be able to get drinks and cold snacks if I were not home.

Scott ate a fresh spinach salad , roast, stuffing , peas , ice cream and thin mint cookies for dessert. Later, I hope he will drink and Ensure for a snack.

Later, I helped him in the shower and soaped him up and stood there while he got all the soap off him. I put his shoulder brace back on and then he stood while he brushed his teeth. I thought I would be really nervous but, he seems to have it down. He is not over confident but, is very cautious.

Milo is glad to have Scott home. Scott is sleeping and Milo is sleeping on his shoulder.

Friday, May 15, 2009

Deployment Approaching

I received a call from Blake tonight, he gave me a date for block leave. My heart begin to flutter when I asked him if he was being deployed. Blake said I didn't say anything about being deployed but, as a mom I felt it. His deployment will last for 12 months.

I then sat down and month by month started to realize the things we will miss throughout the year. Blake will miss Skylar turning 6. We will all miss the Thanksgiving and Christmas holidays. Blake and Kellie will miss their first wedding anniversary. We will miss birthdays.

My heart is aching. Every time I see or hear that another US Soldier has been killed I stop. I look at the TV and I wonder if the news is being reported before the family has been contacted. How hard it must be for the family of the soldiers that are so far from home. Now when I hear about another life of a US soldier, that's life has been taken ,I will wonder if it is my son.

One More Day

Scott comes home tomorrow. I have done a couple things in the house to make things easier for him. I even ordered a personal oxygen bar that increases the concentration of oxygen by 30% helping to relax and reduce stress. It even has a speaker that plays up to four different soft musical patterns. I bought this for two reasons, I thought it would help with the healing of Scott's brain and I thought it would be good for my skin.
I am looking forward to him being home but, also know the recovery is going to be slow. I am still waiting for a call from Dr. Nick's office to see what day next week I take Scott to see him. Everyone is more than welcome to visit Scott at home. He would probably Welcome the company.
Thank all of you for your prayers. Please don't stop praying.

Thursday, May 14, 2009

Physical Therapy

I went to physical therapy on Wednesday to practice some things with Scott. It was the first time I had seem him walk after surgery. He takes baby steps, with the quad cane but does really well. I think he just needs to strengthen the left side. His transfer from the wheelchair to bed or couch was good. They are sending him home on Saturday with a wheelchair ,quad cane and strict instructions not to be out of the wheelchair if I am not there.
I learned how to help Scott safely up from the chair, transfer into the car etc. Physical therapy will come to the house three days a week to work with Scott. Both Scott and myself are nervous for him to be home, me more so then him but, I do think it will be good for his spirit.
My heart goes out to the families of the patients at Sea Pines , I know I could have been in the same position they are. I am so thankful I am not. From the beginning I have looked at all the blessings Scott and I have been given through such a dark time in our lives.
Later, I will post what happened that sent everything into this tail spin.

Wednesday, May 13, 2009

The Man I Love

Scott and I had a wonderful dinner last night. I had picked up Olive Garden and even found a cake similar to wedding cake. Michelle helped Scott out. She made a card with our wedding picture on it and left the inside blank for Scott to write. Michelle has become Scott's little elf. He's is lucky because no one knows me better than her.

As Scott and I were having dinner , he was telling me about a guy in therapy and how he is really stroked out. When Scott's nurse came in Scott asked for the guy's name. But because of hippa she was unable to give it to him. The wife on the man walked in and said to Scott I heard you wanted to know my husbands name. Scott said yes, every night I pray for the people in here and I want to pray for your husband by name. She said his name is Steve and he had an aneurysm. Scott told her Steve would be in his prayers every night.

When I got home I received a phone call from a man I had grown up with. We used to hold hands and roller skate. I think we were six. Anyway, he was checking on Scott and says him and his boys pray for Scott every night. It means so much to me for so many people to be praying. I so believe in the power of prayer.

Monday, May 11, 2009

Happy Anniversary

Happy Anniversary Baby. These have been the best years of my life. I love you with all my heart

Saturday, May 09, 2009

Scott May Be Sprung

Scott has a discharge date of May 16, a week from today. I am ready for him to be home but, wonder if it is premature. I will attend one of Scott's physical therapy sessions next week to see if I am as comfortable as Sea Pines is for Scott to be home alone.

I will have to call Dr. Nick on Monday to make an appt. for the week after next. I dread that appointment but, know it's something we have to face.

Our picnic was fun. Scott was glad to get out of his room for awhile. Skylar did a great job on wheeling Pappy around. When we went back inside Skylar looked at me and said this is so sad and then she leaned over and said it was sad that pappy was in the hos-i-pool. I told her he was getting better but, she said again it's just so sad. On the way home she must have been on a sugar high because she was telling the joke about why the chicken crossed the road and then she would laugh. It was funny because she thought it was funny.

Thursday, May 07, 2009

Spiritual and Medical Review

Michelle picked up Milo and took him to the dog park so I could visit with Scott. It was great not to have to worry about him. Geri has also been helping out during the day with Milo. Pastor Loomis stopped by to see how Scott was. We had a nice visit. I walked out with Pastor Loomis and talked with him for awhile in the breezeway. He assured me that it is okay to feel the way I am feeling.

I heard from Dr. Nick today and they (MD Anderson) reviewed the pathology slides today but, not the scans. They have set up some chemo strategies. Dr. Nick wants to see Scott in 2-3 weeks and we will go from there. I was looking forward - not looking forward, really don't want to know, need to know about Scott's scans and pathology slides today. Now that Dr. Nick texts me it has only made me more nervous.

Wednesday, May 06, 2009

Happy Sick Day

I called Skylar to ask her if she wanted to have a picnic with me, Michelle and Pappy on Saturday. She said yes and that we needed a picnic basket and a blanket. I told her I have both of those and then she said we needed a strawberry cake. I am guessing she said strawberry because every time I pick her up her and pappy get milkshakes, she gets vanilla and pappy gets strawberry. Anyway, she wants a strawberry cake with six candles. I told her it wasn't pappy's birthday and she said it was his happy sick day and we have to sing to him. Oh and the cake has to look like a boy cake cause pappy is a boy.
I'll guess I wait to see what else Skylar wants to add to the menu.
Skylar asked me if they are going to teach pappy to run : ( because she loved when he used to chase her.
Scott is doing really well and has already gained 7.5 pounds. He has asked them to double his food portions.

Tuesday, May 05, 2009

Where's My Boy

I took Milo to visit Scott yesterday. As soon as Scott saw Milo he said " Where's Daddy's Boy"Scott had Milo do all his tricks for the nurse. It was a good visit but, a short one. We had arrived right before dinner and I didn't want Scott's dinner to get cold. We took him Ginger Snap cookies from Sue Ann"s Bakery and little things from home. But, I totally for got his wedding band that he keeps asking for.

Scott looks really good. Yesterday was his first day of therapy and he said it went really well. He has an appt. today to have his sutures removed. I am anxious to see his wound without the sutures.

Sunday, May 03, 2009

Weekend

Saturday, between trying to get rid of a headache and battling with exhaustion I just couldn't get motivated. I finally got out of bed at 1:00 got dressed and went to hang out with Scott for a few hours. I then had alittle day light left to get a couple things done in the yard.

Sunday, my mom drove up and we went to hang out with Scott for about 4 hours. For those that want to visit Scott's therapy schedule if from 10-3.
When we got home I decided to wash and wax my truck. Scott looks at that as therapy, I look at that as work.

Scott and I then played phone tag with Amazing Race. It's the little things that make me miss having him home. For those of you who watch amazing race, you know those black girls deserved to go home for stopping to go to the bathroom knowing the race was that close.

Tomorrow Milo has to be crated while I work : ( He has never been crated for so long. I feel like a terrible mommy.

Saturday, May 02, 2009

A+ Patient

Scott is already eating everything they place in front of him and has already gained a pound only 49 more to go. We are not sure if he will regain the use of his hand, the odds are not good. But, the odds haven't been good so far and he has proved them wrong. Dr. Addington has an office adjacent to Sea Pines and told Scott he can take him there and test can be done to run current through the arm and hand to see how much damage there has been. They call Scott superman. I call him a miracle. The therapy room is huge. He has a workout schedule beginning at 10:00 and not ending until 3:00. The only day of rest is Sunday - just like the good lord wanted it.

Friday, May 01, 2009

Move Successful

Scott has officially moved to Sea Pines Rehabilitation Hospital. His room number is 209. He says the rooms are amazing. The food is great. Sounds like he is on the road to recovery. We can take Milo for visits in the courtyard. Milo will be so happy to see Scott. I am sure he is so confused, he has been at Skylar's for a week now. I think I will pick him up today.
I made a male patient cry today with mine and Scott's story. He said, that God puts people in paths for a reason and he will add us to his church's prayer list. As he was leaving he said that he couldn't hardly look at me without getting choked up and what a strong woman I was. I explained to him I have my breakdowns and my doctor has me on medication anyway that could be helping. He patted me on the back as he left. This was the first time this patient was in our office and I have no idea how Scott came up. It's nice to see guys with emotion.

We're Moving

Scott will be moved today to Sea Pines. He will be an in house patient until he can walk independently and have regain usage on the left side. After the surgery the left side is extremely week. He walked yesterday with a little bit of assistance.
After rehab we will see Dr. Nick to see what our next step is. I packaged all the CT and MRI's and the pathology slide and mailed it next day to Dr. Nick so as soon as he gets a chance to look at them he'll let me know. He and I have been texting back and fourth, with an occasional phone call since all this began.

Wednesday, April 29, 2009

My Afternoon - Evening Visit

I decided to call it an early night at the hospital. Scott and I both were exhausted. . Pastor Loomis thought it would be good for both Skylar and Scott for her to come to the hospital. I guess it was good because I had run out of excuses to why I couldn't pick her up. When Skylar walked in the room she immediately jumped in my lap and asked a million questions. When the nurse came in to prick Scott's finger for a sugar test, I explained to Skylar what they were doing and she told the nurse he has allot of sugar. The nurse came in and I had moved to the other side of the bed. The nurse took his bandage off and Skylar said he looked like a football and I looked up at Scott's head and he is stitched like a football. I gave her ice cream and we sat and talked. Uncle Blake told her it was time to go and she got off my lap gave me a kiss and left.

Physical Therapy came in and Scott walked with a walker. I watched is feet as he walked and he did really well.Dr. T walked in and asked Scott if he was ready to go home. Scott looked like a kid in a candy store. I quickly said he can't go home and luckily the physical therapist agreed with me. Scott will go to a in house place that has physical therapy until he recovers.

Love Notes

I wanted everyone to know when I go see Scott that each love note that is posted I tell him about. He is able to pull up everything on his iphone so he knows of your thoughts and your prayers if it is posted. Scott and I are both grateful for all your thoughts and prayers. Thank you all for being there if only in a prayer.

Tuesday, April 28, 2009

3:00-8:30 Visit

I went to visit Scott after work. Each day I see in he looks better. Dr. T. came in today when Scott was in x-ray. I thanked him again for saving Scott's life. Dr. T. then said he was pretty hard on me in the emergency room and I agreed. He said he really didn't think Scott would make it because he had lost a few like Scott. He said that when Scott became nausea's after surgery he thought he was done for sure. Dr. T. is blown away by Scott - he even broke a smile.I said to my mom that I hope Scott's grave condition gave Dr.T. a new outlook for his next hopeless surgery.
After Dr.T. left the room I realized that I have never moved from the Emergency room. I feel like I am still there. This has been a nightmare and I can't seem to shake it.

Monday, April 27, 2009

Evening With Scott

After work I went to see Scott. I gave him a facial included with a mud mask. I asked him if he would be embarrassed if someone walked in to visit and he said no. Wouldn't you know it Dave and Beth walked in to visit. Scott got beautiful yellow roses. Scott has hook ups all over town. Kim from Cantina brought him a chicken and spinach enchilada and salsa and chips. Doreen's husband brought Scott a gourmet menu, he'll be having steak for dinner tomorrow night.
I did get a chance to speak to Dr. Gold, Scott's neurologist. He said he is anxious to hear what Dr. Nick has to say. Dr. Gold seems to think there was a small bleed and things got out of hand. Maybe the tumor, swelling & a small bleed does not mix. I have had an overwhelming amount of support. Thank all of you - it means so much.

Sunday, April 26, 2009

It's Amazing

After I posted tonight's post I went through and read my love notes. I had notes from people that I didn't even know had the blog address. I can not thank each of you enough for all your prayers and support. Thank all of you that have offered to help in anyway. Scott and I are so grateful for our friends. Please don't stop praying.

evening Visit Update

Scott new room number is 702A. I took up shaving cream and a razor he let me shave him and I washed him up and put lotion on him. They are tracking a vein that they pushed Phenergan anf Dilantin through. He still seem to be in good spirits.

Visit from 2-4

Scott didn't eat lunch but, he did eat ice cream for me. He said he had a headache which makes me extremely nervous. Your first thought isn't Tylenol but is a cat scan. I know we can't live our lives on pins and needles but, I think that is the way it maybe for awhile.

SICU to ICU

Scott is doing really well. He cried and said it was the clearest his head has felt in months. He said he had a normal headache, the ones that he could take 2 Tylenol. They are going to get him up to walk today and plan on moving him from SICU to ICU. I will be going back to work tomorrow but, will leave for my visits with Scott. There is nothing I can do at home and I hate watching the clock for my next visits. Keep praying

Saturday, April 25, 2009

8:00 Visit Update

Thank you all who are praying, please continue to pray I think they are working. My evening visit with Scott was better than my afternoon visit. He felt he ate more applesauce and vanilla ice cream. Without thinking I gladly opened it up to feed him. He took his glowing finger and pointed it at Brandi and was making ET noises. We cut our visit short so he could get some sleep. Tomorrow they are going to try to get him on his feet.

Update 2-4 Visit

I just got back Scott seems to be better. The nausea seems to be under control. He still has allot of emotions. He didn't seem to be as agitated. I brushed his teeth, I washed his face and to help keep his wrist straight I put his wrist brace on. He showed me he could lift his leg up a little bit. He stroked my face with his hand for the first time. I am trying not to feel anything good or bad because I don't know what to expect from one visit to the next.

Update from 9:00 Visit

What an emotional roller coaster. I just got back from the hospital, Scott is still really nauseous, agitated and exhausted. I just heard from the nurse and they think Scott maybe having withdrawals from the Nerontin. They finally got him to swallow the Nerontin and they had Topomax in sprinkles form. They are giving him Dilantin through his IV. Please don't stop praying.

Friday, April 24, 2009

Update 2-4 Visit

Scott's color looks good but, he is so nauseous. The nurse thought since Scott drinks so much Mt.Dew that that would make him feel better. I went to the vending machine, asked for straws and gave Scott a few sips. I think that made it worse. He is so miserable that I decided to let him rest. Aaron drove up from Jupiter and I thought if I left he would be able to stay longer. Blakeand Kellie land in Orlando at 5:30. They are not suppoe to be as strict on the evening hours as they are during the day. Hopefully, he'll feel better tonight.

Update From 8:00 Visit

Forgive me if I repeat myself from post to post. Everything is a blur. The surgery was to save Scott's life. We didn't know if it would leave Scott paralyzed on the left side. Scott was responsive this morning. His head hurt but, whose wouldn't. I told him Blake was on his way and he began to cry and ask why. I told him he had brain surgery and Blake took early leave. I told him he was fine and he had been though the worse part. I hope I am right. I rubbed his arm and asked if he felt it and he said yes. This is good news. He has compression cuffs on both legs and he feels them too. Dr. Nick says we are on a good path for something so dangerous. He said to focus on the positive, recuperation and rehab , we'll worry about the RX later. Please continue to pray for Scott. We are not out of the woods yet.

Thursday, April 23, 2009

Scott Update

Thank you Michelle for the early blog. Emergency surgery had to be done to save Scott's life. He didn't have alot of time and quick decision had to be made. The hardest decision I ever had to make. Sorry Aaron I looked to you to help me make a decision that could change the rest of Scott's life.
Scott survived the surgery, he is off the ventilator, it is to soon to tell anything. Scott is in SICU.A CT scan will be done tomorrow and we will go from there. We don't know what the paralysis is yet and may not know for awhile. Scott looks good and seems to have good color.
I have contacted the Red Cross to have Blake & Kellie home on Emergency leave.
Please continue to pray, pray and pray

Keep Scott in your Prayers

This is Dalana and Scott's friend Michelle, I am writing on this without the knowledge of either of them. I wanted to let everyone know that Scott was rushed to the hospital early this morning. He has swelling and bleeding on the brain and they more than likely are going to have to do surgery on Scott. I don't have anymore information than that right now. I know Dalana would want to keep you all updated on what is going on with Scott. I know this blog is probably not Dalana's first priority right now so I will updated it as I find out more information. I know that all of you love and care deeply for Scott and Dalana as much as I do so please keep them both in your thoughts and prayers.

Wednesday, April 22, 2009

Frustrated With Brevard County Medical

I phoned Scott this morning before my post to find out how he was. He said he felt OK. The next call I got he had called 911. He said all of a sudden he got really sick. I left work and met them bringing Scott down the hallway. I called Dr.P's office to see where he had hospital privileges, Cape Canaveral and Wuesthoff in Rockledge were the two. I had them take him to Cape Canaveral and I called Dr.P's office to tell them Scott was in transient. I was at Cape Canaveral shortly after Satellite left.
When the doctor showed up I gave them Scott's medical history, the drug he was given on Thursday, what had happened on Monday. I gave him Dr. Nick's cell phone number and Dr. P's number. Cape Canaveral's MRI was down - that should've been my first clue. They spelled Scott's last name wrong - I corrected that and then the had his birthdate wrong and corrected that. The doctor ordered a cat scan to rule out a hemorrhage and he ordered numerous blood test. I explained those blood test he ordered were done in Dr. P's office on Monday but, he continued with the test. Okay we were there so why not check out everything. The doctor came in and said he spoke with Dr. Nick and Dr. Nick ask him to give Scott a steroid shot and asked Scott if that was okay. If that was what Dr.Nick wants yes then give Scott the steroid. The doctor explained he didn't know what else to do because this wasn't his niche. Not his niche, so he was sending Scott home. Dr.P never even phoned. I decided there were to many doctors in the mix and it was time to return to MD Anderson where Dr. Nick is upstairs. If I need to take Scott to the hospital in Orlando than that's what I have to do. The drive is longer than what it takes o administer the Avastain but, it is worth the drive.

No News Is Good News Right?

Scott says he is feeling better but, still has no energy. I am waiting to see if he is able to get out of bed today and move around. If he doesn't then I'll have to call Dr. P. to see if he can give him a steroid shot. They normally give the shot but, we opted not to because of the fact that of the dex.
that Scott took orally for so long deteriorated the muscle's in the shoulder and hip. We may have no choice then to go for the steroid shot if Scott can't seem to have enough energy to get out of bed.

I am entertaining Flat Stanley that was sent to me by my niece, Kylee . Flat Stanley is a book character that had been flattened by a bulletin board. Flat Stanley is put in an envelope when he wants to visit. My job is to be a gracious host and show him around. Then mail the teacher photos and a letter with his adventures on the Space Coast.

Monday, April 20, 2009

Sleeping Beauty

Scott's finally resting. I phoned Scott from work to let him know not to call the oncologist because I already had a call into him. Scott hasn't felt good all weekend, he's been nauseous, has had a headache etc. I remember the doctor saying the Avastin didn't have any side effects so I decided to call to see if Scott should take his Zofran and about the pressure in his head and his headache. The doctor wanted to see Scott, so I phoned home to tell Scott to be ready and I would pick him up in a little over an hour. I went to pick up lunch for the office and Michelle called me on my cell phone to tell me to call Scott. I dropped off lunch and headed home. I walked through the door and Scott was white as a ghost. I helped him put on his shoes and out the door we went. When Scott got through the door he got really sick. I don't know if it was going from the inside to outside but, he began o throw up and he didn't think he could make the drive. I phoned the doctors office to tell them that I was calling 911 to have him taken to the hospital but, by the time they had gotten back on the phone, I had Scott in the truck and was on my way there.
On our way there (I'll spare the details) Scott got really sick. We arrived at the office and they took Scott back right away. The doctor came in Scott was clammy, he was white and his head was hurting so bad that I turned off the lights in the room. The doctor seemed to be in somewhat of a panic. He said Avastain doesn't have any side effects. He ordered a bag of sodium, Demerol and phenergan and numerous blood test. The nurse with the Demerol became Scott's new best friend. My poor sick baby : ( The Demerol took effect right away but, made Scott goofy.
Dr. P. said if it happens again tomorrow Scott will have to have an MRI to see what is happening in his brain after the Avastain.
His conclusion today was the Avastain must have aggravated the chemistry in the brain.
I came home to find Michelle there to see what she could do to help. I even had Cold Stone in my freezer. I have the best friend.
I drooped Scott off to sleep and headed to Melbourne to pick up his meds. Hopefully, all will be calm tomorrow.

Sunday, April 19, 2009

A Sister's Love

This is my sister, Tina and I in the early 70's. We are extremely close but, with two very different personalities. Growing up I was the sneaky one, I thought more about if I did do it and got caught how much trouble I was going to get into. Tina had a different outlook she would do it, if she got caught she would suffer the consequences. I don't know why but, I was terrified of spankings. Tina being the little spitfire she was would take my spankings and I would let her.
Most of you would think that what a horrible older sister I was but, after all I didn't want a spanking and she didn't seem to care, so yeah spank her. The spanking didn't even phase her. Her and I was each other's best friend and then her and I would fight yell, scream, throw things at each other. I could out run her and I did, as she was chasing me to beat me up.

I was talking to Tina last night and she mentioned how when we were kids she would take my spankings and if she could she would take my pain. As I sat there and listen to her words I was speechless. After I hung up her words echoed in my ear. Why would someone want to feel this pain? Then I heard the words that I've heard Scott say all too many times "this is my cross to bare" and I thought I would never want anyone to feel this pain so "this must be my cross to bare"

Easter Recap




I know it's after Easter but this is the first time I have actually had time to sit and blog. Our Easter weekend began with a surprise visit from Blake and Kellie. They were suppose to be in Beech Mountain at Blake's grandparents cabin but, Blake decided he needed to be home and Kellie graciously agreed. Their timing couldn't have been more perfect.
My mom was on her way over for Easter weekend so we planned on meeting Matt & Michelle at Enigma for dinner and to listen to Dave play. Blake excused his self from dinner because he wasn't feeling well. We finished dinner and then enjoyed watching Matt & Kellie play Wii.

Blake had a bug that lasted 48 hours leaving him in bed for Easter. We all were up for Sunrise service (except Blake) Scott wasn't feeling so well during the service so I walked him back to the truck. When we returned home everyone took a nap while I prepared Easter lunch. I had the eggs laid out ready to be dyed. Bunny Brandi had hid the eggs but, not very well and Skylar told her about it. She had her hand on her his when she approached me with the way her mom hid the eggs. Skylar said you can see the eggs, that they were not hid so I had Brandi go out and re hide all the eggs. This time she hid them right according to Skylar. Kellie helped Skylar color the eggs and Tom was disappointed I didn't make deviled eggs. The Easter Bunny brought Scott a Easter basket with a ipod shuffle and cool headphones. Skylar made her own plate. on her plate she placed a peep full of jellybeans and a roll.






Monday he was up and around. While he was visiting friends I came home and cloroxed the house so no one else would get sick. With them Blake and Kellie brought Reggie their new little cocker spaniel puppy.

Tuesday we were going to go to Seaworld. I woke up did my 4:30 am walk over the causeway came back showered got ready for my day. Scott was watching T.V and said I may want to check the weather. Good job Scott . Orlando had tornado warnings out and was covered in rain. We choose to stay home hit Hurricanes for lunch and then to the shooting range.

Wednesday the kids went to Seaworld. I picked Skylar up and tried to bake cookies while making dinner for the kids when they arrived home. I messed up the cookies. I probably forgot something - I put them down the disposal. I even messed up a box mixed brownies. Oh I forgot I was super tired because Blake and Kellie left their puppy in our room for the night and he was up and down all night. I was exhausted the next day.

Thursday Scott had an appt. with the oncologist. The doctor gave him a choice of taking his chemo or waiting until one day next week. We were already there,so why not go ahead. Our appt. was at 1:30 but, we didn't get home until 6:00. I was feeling more rested but not enough to try cookies from scratch again. So I picked up Tollhouse cookies (break & bake) now what was I thinking the night before, this was a piece of cake. I even ended up with beautiful brownies. Blake and Kellie were at a ball game with grandad. I packed a picnic basket for their long journey home.

Friday I had over slept. It was a good thing I phoned Michelle the night before and called off walking. When I woke up I left notes to where things were that needed to be packed in their cooler. I wasn't ready to say goodbye so I headed to work. I was in the back with a patient when I heard Michelle say "he is so cute". I came out front I cried as I hugged them goodbye. I told them they weren't suppose to come by the office and they said they couldn't leave without saying goodbye. In my head yes, the could have. I came home from work and collapsed with exhaustion. I we up Saturday about 10:00. Feeling guilty for sleeping so late, I went to Landscape Depot and bought one ton of Florida River Rock. Wen I got home I put on my work clothes and gloves and loaded the rock piece by piece, where I took each rock and began to trim out the flower beds. Scott sat outside for awhile but, then went back inside.
I unloaded the whole truck , cleaned up my mess.

Sunday, today, I woke up got ready for church. So many people came up to me to see how Scott was and to tell me they were praying. Upon leaving church I called Scott to see if he wanted coffee. While in the Dunkin Donuts line, our normal girl who knows are order all to well, stepped out f the side door with our coffee. Back home I got back in my work clothes to finish up a couple more things I wanted to get done in the yard. Now I am just doing laundry because I know my walk tomorrow is going to kick my butt.

Friday, April 17, 2009

First Treatment

There has been so much to blog about that I haven't had time. Scott and I had an appt. with the oncologist yesterday. Much to our surprise they began Scott's treatment. The chemo pill Sutent is unavailable at our pharmacy so we will have to have it shipped to us through MD Anderson in Orlando. His first treatment took about 2 hours but, the following ones should run alittle quicker.
He seem to handle it well. He felt bloated after the treatment. He did manage to eat a cheeseburger and then home to bed. When he awoke this morning I asked him how he felt and he said he was tired. His next treatment is in 2 weeks.
I am going to keep the house quiet this weekend and hopefully he'll get alot of rest.

Sunday, April 05, 2009

The Love Continued To Flow.

Scott and I got up to go to church. While Scott was shaving he felt like he was going to pass out. I walked over where he was laying on the bed and his whole body was clammy. I got him a cool wet rag and when I walked back to the room he had the rag laying on his head and was covered up. He was down for the count. I did leave him, to go to church. I felt so comforted, even through my tears. Without Scott being there, people must have felt more comfortable asking me about him. I was given an ER doctors name to drop if I end up there with Scott by his father. I told him I didn't have a problem dropping a name. Then the pastor came up and when I went to shake his hand, he said I think you need a hug Dalana.
I then came home changed clothes and decided to take some mental therapy time. I made sure Scott was feeling better first. When my phone rang if it wasn't Scott I didn't answer.
Thanks to all of you that have put Scott and I in your prayers.

Friday, April 03, 2009

Here's Where We Stand

As soon as Dr. Nick walked in I knew the news wasn't going to be want we wanted to hear. Dr. Nick asked Scott how he was feeling. Scott explained how he felt off balance, he felt pressure in his head, he had no appetite etc... Dr. Nick then asked if we were willing to travel for a second opinion our options were Boston, Texas , Duke wherever we wanted. Our other option was to began treatment Avastin which is administered through Scott's port and a pill taken by mouth to help fire the Avastin.
I asked Dr. Nick is it the tumor and he said he didn't know and he didn't know if he would ever know. It's the nature of the beast.

Waiting

The only news I have right now is Dr. Nick is running 3 hours behind. You always expect to wait a least an hour but, this is alittle excessive. I guess that is what happens when you are seeing the best of the best. The hospital gave us $5.00 to o have lunch. I would have opted for a pillow and a nap. Can you tell my head is beginning to spin? I'll update as soon as we see Dr. Nick

Thursday, April 02, 2009

April Fools

I wasn't going to blog this because some of you wouldn't think this was funny. Michelle and I thought it was really funny. Yesterday Michelle and I put topical ( numbing agent that is used before the injection is givin) around the rim of my bosses drink. Michelle kept saying he doesn't realize it is on there. I told her he probably does, he is not going to tell us we got him.
Today he asked for Michelle and I. I was on the phone with a patient when I had two soapy hands all over my face. I told Michelle I guess he ran out of paper towels. That was not the case. Apparently, he didn't finish his drink from yesterday and he decided to finish it off today. When he picked up his drink his lips were numb again. The light above his head goes off and he realizes the joke that was played on him yesterday. We asked him why he didn't realize it yesterday, he said he did, he thought he was having a stroke. Now if you think you were having a stroke wouldn't you alert your staff?
When I got home I played the same joke on Skylar and Scott. Skylar knew instantly because it is not the first time it has been done to her. She was trying to worn Pappy but couldn't find the words until Pappy took a drink and realized what I had put around the rim of his drink also..

Tomorrows The Big Day

We see Dr. Nick @ 11:30 Friday. We are both ready to get it over with and see what the course of treatment will be. I will take my laptop and for those of you whose phone numbers I don't have I will post a blog. I am also going to pack a bag for the two of us just in case Dr. Nick want's to admit Scott to the hospital. The last couple of times he has had swelling he placed him in the hospital and Scott was administered Mannital . This drugs results are fast but, is slow to administer. I has to be done over a three day period.
On a different note, Skylar starts school this year. I can not believe how 5 1/2 years have flown by. I took her yesterday for her summer haircut and she looks so cute. I have suggest to her dad that she go to school near our home. That way she will not be stuck at a before school and after school child care program. I think that is alittle to much for a 5 year old. If he decides to take me up on my offer my whole afternoon routine will have to change. The dreaded going through the backpacks, making sure homework is done, dinner (the last time I cooked dinner during a weekday my kids were in school) the nightmare is coming back to me. Hopefully, Skylar won't give me as hard of a time as my kids did, she's usually pretty good.

Monday, March 30, 2009

The Tears Continue To Flow

Scott and I are numb after this last MRI. Sunday we went to church. I asked the Pastor for special prayer so after the service we went to the prayer room where they prayed for Scott. Everyone in the prayer room cried even the Pastor. Scott kept saying" I just don't understand" My heart is broken and sadly I have questioned my faith.
My mom has Scott on every prayer chain in every state that she knows someone. I feel guilty because I am just to exhausted to pray.
I don't understand why bad things happen to good people. I don't understand when Scott takes a step forward why he gets knocked back three. I don't understand why we are being tested time after time after time.
My mom always says that God never puts more on you than you can handle. I don't know if I agree with that anymore. I think it has gotten to the point where we are just going through the motions,
waiting for the doctors to tell us our next move, our next course of treatment.

Friday, March 27, 2009

This Makes More Sense

Scott and I settled down enough to talk about the radiologists reading of his MRI. It is not the cerebral artery that is swollen. It is the right side of his brain that is swelling. This could be a number of things, radiation therapy from 15 years ago, chemo, scar tissue, necrosis etc. The swelling in the brain has shifted the cerebral artery to the left side of the brain. If the artery continues to shift it will have no where to go. If it has no where to go or it gets pinched off if can cause a stroke or death. The radiologist said the tumor is stable. Now we wait until our appt. on th 3rd.

Therapy

Michelle and I have started walking the causeway at 4:30 am. We are able to walk the causeway and return back to work, get dressed for work, make Dr. Joe's coffee and begin our work day @ 6:00 am.
I am not a night person but, I love early mornings it is peaceful and still a little cool. I love hearing the water beat against the rocks.
It's great because I don't have to worry about working out when I get home and it helps to reduce the amount of stress throughout the day that I have been feeling.

Wednesday, March 25, 2009

Another Hurtle

Scott had his MRI today. The tumor is stable but, the cerebal artery is swollen and has caused a midline shift. This is a problem because if the midline continues to shift eventually it will have no where to go and could either cause a stroke or death.
We have an appt. with Dr. Nick Friday Apirl 3rd. We don't know what is causing the swelling or what the treatment is. If dexamethasone is an option - we hope it is not our only option. Scott does not want to take it again because of the damage it has done to his body. But, if it is his only option then we will have no choice.

Thursday, March 19, 2009

Determined

Scott has been working out excessively. Scott works out his left hand/arm with assistance from his right arm/hand. His right arm is huge. Yesterday his left hand was able to pull down 5 lbs. 5 times unassisted. Scott also walked the tile for an hour. What this does is aligns his foot to stay straight and flat. His eating habits are better and he seems to have a better handle on his emotions.

Wednesday, March 18, 2009

Back On Track

Scott had his evaluation with Physical Therapy yesterday. His therapist wasn't very happy with
Scott's lack of progress (Scott knew she wouldn't be) Scott did man up and told her he dropped the ball. Somehow he let the lack of use of his arm and leg to get the best of him. She asked him to walk for her and he said it was going to be the walk of shame : ( Poor Scott, I just didn't know what else to do or how to shake his depression. She understood but, was not sympathetic which is good for Scott. He started therapy yesterday and was exhausted last night.
Skylar was over for a few hours so her and I went to dinner and then shopping. It amazes me how fast she is growing up. At dinner, I felt like I was having a conversation with a small adult. When she speaks I listen in amazement with her vocabulary. She can dial the phone now so I am pretty sure as soon a she memorizes my number she will be calling more often.

Thursday, March 12, 2009

Three Cheers For Scott

Scott has an appointment for physical therapy on the 17th. He is returning back to Health First with his original therapist. The first appt. is for an evaluation and then he will began physical therapy. I think it will build not only physical strength but also emotional strength and allow him to get back in a routine. I willing to do whatever I can at home to help with his progress.
Scott has been working out more at home, which is great to see. He has to assist the working out of his left hand with his right so it takes him longer than it would you or I. But, he is hanging in there and determined.
Scott has an MRI the end of this month and I am apprehensive about it. My mind is my worst enemy. I'll be glad when it is over and we get the results.

Wednesday, March 04, 2009

Rollercoaster Of Events

Scott is really depressed/frustrated over the fact that he still is dragging around his leg and arm.
I suggested me helping him with working his leg. Last night was my first night as a physical therapist.It makes me nervous not being really sure what I am doing. For instance I clipped the weight to a belt that went around Scott's shoe and then I stood up. I'm looking at Scott - Scott's looking at me..Uh Dalana you have to make my leg move. Oh yeah... That's one of the problems he can not making his leg bend like he is marching. There is one exercise that he does sitting where he extends his leg and that one he does really well.
Scott's state of mind really concerns me right now. He has lost a lot of weight. It is really starting to take it's toll on him and breaks my heart. Sometimes I feel so helpless and we both are on an emotinal rollercoaster.
We went to funeral for a 27 year old girl , whose life was taken from cancer. Not a good thing for Scott and I to do but, because it was a family that we've been close to since the 70's. Me and my family set up a hanger that the family owned for the family and friends to come back to after the funeral. There were so many people that after the first hundred people, you didn't even see people's faces but love that all the people had for this family. The events hit to close to home.
I did meet a man, who worked for the pentagon. He asked me to give Blake his e-mail and he would walk him through the steps for flight school. I passed the information to Blake and he was estactic. He was just talking to his Sgt. just on Tuesday and I had no idea he was even interested. If he is accepted it will put him 7 hours from home.
I believe he was put in my path for reason. Out of 200+ people he was the one I met. I have been doing alot of soul searching and feel that God is really working in my life.

Friday, February 27, 2009

A Kodak Moment Missed

I always take my camera with me but, when we went to pick up Blake and Kellie I didn't see a need to take it, that won't happen again. I missed some off the sweetest pictures that forever will be held in my heart. I wrote this in an e-mail to my Aunt a couple days ago and I didn't wanted to leave it as I wrote it to her. So I copied and pasted it from the e-mail I sent her..

When we picked him up at the airport these little kids would tug on his uniform and Blake looking down he found extended tiny hands thanking him for what he was doing for their future - every small child brought extra tears for me. I wondered if they really understood what Blake fighting for us meant. Blake would graciously take their tiny hands and with that strong military hand shake say you are Welcome.

Wednesday, February 25, 2009

Another Message From The Other Side

We went to see John Edwards last night and out of 500 people we got a reading. We made friends with several people in line and three of them wanted to sit with us. While waiting we talked and found out we had so much in common. John Edwards energy was being pulled to them and they stood up. He then began to see a bear a build a bear a special bear and I raised my hand and told the story of my son taking his grandmother his pooh bear when she was in the hospital. He asked me if it was a special bear, yes it was a bear he carried around as a small boy. Then he mentioned the name Mary Elizabeth I said that was his grandmother. She acknowledged the bear and then he said someone is in uniform and I said my son is in the military and he said that was her way of acknowledging Blake and then he asked who Scott was I then thought Scott was going to drop to the floor. I handed him the microphone and both his mother and brother had come through and they brought through someone for the other side of the room tied to me. After about 10 minutes and John Edwards saying my name over and over I asked if someone over there maybe had a root canal in our office. That was the connection her friend sitting next to her husband had been in our office several times and our energy brought through someone for them. It was awesome..Scott is still shell shocked

Saturday, February 14, 2009

The "BIG" Surprise

Scott updated my wedding ring.. Does he rock??

Blake and Kellie's Visit Continued

Thursday I show up to work. Michelle reminded me that Blake and Kellie had to turn in their marriage license before they left, which meant they couldn't get married at sunset as planned. They were flying out Sunday. Blake and Kellie went to Disney for the day so the marriage was planned via text and phone calls. If you can't get married at sunset, the next best thing was sunrise. Blake said is was a stress free wedding. Are you kidding me?? Scott and I went to pick out wedding bands for them - their weeding gift from us. I picked up a simple bouquet of bright colored roses and wrapped them with satin and tied a bow and found a simple white dress perfect for a beach wedding at Ross for $25.00

Friday the big day I was mother of the groom, the notary and the photographer with help from Scott. The Groom was handsome and the bride beautiful.
In memory of Blake's grandmother a rose was removed from Kellie's bouquet and Blake kissed it before tossing it into the ocean.
My new daughter in law
Blake found a piece of sea glass handing it to Kellie. When Blake was a kid we use to go to the beach and look for sea glass.
They spent the rest of the day running errands.
Saturday it look like cupid had exploded in our house. Blake and Kellie had decorated the house for Scott and I for Valentine's Day. It was great.
Well what would you do if you were home on leave...

Wednesday, February 11, 2009

Blake and Kellie's Visit

Blake and Kellie were bumped up first class on their trip to Orlando because he was in uniform. As Blake and Kellie were waiting on their bags these little kids were walking up a shaking Blake's hand and thanking him. It was a mothers heart felt moment as these kids would tug on his uniform to get his attention just so they could shake his hand. Our first stop Doubles Hoagies. He said he has been thinking of Doubles since he has been at Ft. Drum. It was great because his grandfather and Matt and Michelle met us there.
Scott and I headed home and Blake and Kellie began to make their trips around to see family and Blake meet up with a high school friend. Later that evening he hung out with his friend and a few sparklers lead to this. Kellie being from Boston thought that she could throw sand on this fire to put it out. They needed Smoky The Bear for this fire. So they ended up calling the fire department.

Blake was being baptized Sunday afternoon, so we went to the 8:30 service. Blake's grandfather surprised us and showed up. It was bittersweet because I do not believe that he has been in the church since Blake's grandmother had passed away. Scott and I are just as guilty. We had a small cookout with family and friends before Blake being baptized. Scott grilled his yummy ribs.
Blake's faith has really grown since losing his grandmother. He thought how great it would be to be baptized in her pool. Pastor Loomis was all for it even though the water was a bit cold.After Blake was baptized the kids played on the beach. Skylar found a nice old man that let her help him fly his kite. Skylar was so happy to have her Uncle Blake home and so was his mom.
On Monday we went to Disney Kellie hadn't been in years. Scott and I thought we would tag along. Scott and I rode one ride and decided to go to downtown disney for people watching and to build my little ponies for Skylar. It was great you have a box and it is $25.00 for as much as you could stuff in the box. So Skylar ended up with three ponies dressed with all the accessories. It was sad because we had to have these little kids help us. We had tickets to The Hoop De Doo dinner show.

Tuesday evening Blake was to go purchase a white shirt for engagement pictures with Erica on Wednesday, instead he showed up with a marriage license and wanted me to marry he and Kellie on Friday at sunset on the river. Is this legal?? Yes, in the State of Florida it is legal for a notary to perform a marriage of a family member.

Wednesday we went to and had lunch and drinks at the cocoa beach pier. I just wanted to get a feel for the pictures Erica was going to take. This is a picture I took on the deck. Erica did a fantastic job on their engagement photos. I can't wait to see the rest. Here are a few.
T

Friday, February 06, 2009

Back On

Blake just called everything is back on schedule : )

The Army Pisses Me Off

I purchased plane tickets when Blake first told me he had leave and gave me the dates. Then the Army decided to change the leave dates to a week earlier. So I had to pay the fee to reschedule their tickets. I spoke with Blake this morning to see if he was as excited as I was - one more day.
His response was I may have bad news I'll let you know later. Not something you say and then hang up so I say, what's going on Blake - he may not be able to sign out until 0600 tomorrow I don't know if it's am or pm. All I know is his flight leaves at 6:00 am out of Boston. Six hours away from his base because that is where Kellie lives.
I am so sick of the lack of consideration of our soldiers - who have not seen their families in a long time and make plans only for the Army to have the upper hand and change plans or make decisions for them. I am also sick of the military time bulls**t. Report back at 1300, why can they not say 1:00.
I am also sick of hearing that is what he signed up for, well it's not what I signed up for. Those soldiers have families to. My whole family is meeting at the airport to welcome Blake home.
Skylar was upset she couldn't make Belle's birthday party , so I had to explain that Belle's party is the same time Blake airplane lands. She understood and was OK with that. But, now if Blake doesn't land Skylar is not going to understand.

Wednesday, February 04, 2009

Three More Days

Blake and Kellie are arriving Saturday the 7th for a week long visit. I am over the top with excitement. We have so much planned. The Saturday he flies in, my "whole" family are coming over for a BBQ.
Blake lost his grandmother about a week before he was to report to Ft. Drum NY. Since then Blake has grown in his faith and wants to be baptized while home. When I spoke with him yesterday on the phone, he decided he wanted to be baptized in his grandmothers pool. I am on an emotional roller coaster, trying to find the source of it. When Blake told me of his plan , I began to think of how thrilled his grandmother would be and it made me cry because I wish she could be here to see it. Blake's grandfather will be there and I wonder how he will do. So on Sunday at 3:00 Blake will renew his faith.
Monday we plan to go to Walt Disney and we have reservations for the Hoop De Doo show @ 5:00.
Wednesday Erica is going to take pictures for Blake & Kellie.
It seems like so much to cram into one week.