Friday, May 29, 2009
Thanks so Much
Hey, it's me the patient. I want to thank everyone who gave support in this very trying time for my family. The love notes sent to me while I was sick meant more then words could describe, that I promise. when you were as sick as I was friends and family are the shoulders you need to stand on until you feel better and although I have a long road of recovery in front of me, it felt great to see everyone standing up beside and supporting the most important person in my life, my wife. we both needed people there and I am so impressed with all of you who took the time to show support for not only me, but her. I will not forget your kindness, and friendship. My wife is my world and means everything to me, without her I truly feel I would not have made it through this dark time. So once again thank all of you for the showing of support, it really blew me away. please do stay in contact and continue to follow my progress through the blog or drop me an email anytime.- szech@cfl.rr.com
Thursday, May 28, 2009
Weigh In
I brought out the weight scales to see how much Scott weighs - I was thrilled to see 156. He is eating really well. I made a large pan of sausage gravy, to make it easier for him to warm in the microwave, I divided it into smaller bowls . He loves biscuits and gravy for breakfast and it is the easiest thing for me to make.
I made spareribs, salad and bake potatoes for dinner and he cleaned his plate. He even opted for an rice krispie treat for dessert. In the morning if he is awake at 4:30 which he usually is, he drinks an Ensure and a apple juice.
I try to keep a few things prepared in the refrigerator so he has a choice of what he would like to eat. I don't want him to get bored with one thing. It also makes it easier for me.
Through all this is has made me want to be more attentive to people that are ill. How even if it is a one or two meals a week - how much easier it will be for them to have an already prepared meal. So I will be asking my pastor who I can help.
I made spareribs, salad and bake potatoes for dinner and he cleaned his plate. He even opted for an rice krispie treat for dessert. In the morning if he is awake at 4:30 which he usually is, he drinks an Ensure and a apple juice.
I try to keep a few things prepared in the refrigerator so he has a choice of what he would like to eat. I don't want him to get bored with one thing. It also makes it easier for me.
Through all this is has made me want to be more attentive to people that are ill. How even if it is a one or two meals a week - how much easier it will be for them to have an already prepared meal. So I will be asking my pastor who I can help.
Wednesday, May 27, 2009
Sorry To Panic You
A couple of you thought the Tail Spin of Events was recent. It was what started all this. I didn't mean to panic people.. Sorry
Tuesday, May 26, 2009
Taking A Break
This weekend I decided to take a break from the outside world. I choose not to answer my telephone, not to open my computer, I didn't even open my mail . I did do a trip to the grocery store.
Scott and I spent the weekend watching Jon & Kate plus 8. Oh lord, I don't know how they do it. We had never seen an episode. I think we are caught up enough on the last 4 seasons. I cooked and cleaned and cooked and cleaned. I have meals prepared ahead of time so Scott can just pop stuff in the microwave and it still be homemade. He loves my biscuits and gravy and that is oh so easy to make.
Scott seem to be doing OK I think weird neurological healing is causing crazy things with his left side. I spoke with Dr. Nicks nurse this morning outside of a few blood tests we have the go ahead on chemo : (
Scott and I spent the weekend watching Jon & Kate plus 8. Oh lord, I don't know how they do it. We had never seen an episode. I think we are caught up enough on the last 4 seasons. I cooked and cleaned and cooked and cleaned. I have meals prepared ahead of time so Scott can just pop stuff in the microwave and it still be homemade. He loves my biscuits and gravy and that is oh so easy to make.
Scott seem to be doing OK I think weird neurological healing is causing crazy things with his left side. I spoke with Dr. Nicks nurse this morning outside of a few blood tests we have the go ahead on chemo : (
Friday, May 22, 2009
Events That Threw Us Into A Tailspin
I am asumming that when Scott woke up at 3:00 am on the morning of April 23, he was disorientated from all the swelling in the brain. When Scott got to the foot of the bed he collapsed. The sound was a horrendous. I jumped out of bed and Scott was laying on his stomach, which means he fell from a standing position forward.
Blood was coming from his mouth and when I rolled him over his eyes were open but, he was dazed, non responsive and he had started to posture. I picked him up and put him on the bed and began to pack for a trip to MD Anderson. Something kept telling me not to put Scott in the car and drive to Orlando. I called 911 to take him to Holmes and thought once they checked him out there then I would drive him to Orlando.
I never imagined the seriousness of his condition. They took a CT scan and the emergency room doctor came in with the results. He looked at me and said I am not going to sugar coat it for you. The swelling in the brain had began to invade the other side of the brain, the mid line shift had shifted 15 mm, there was bleeding on the brain and the spinal fluid had began to collect on top of the brain. Scott was going to need emergency brain surgery. Scott had a horrible headache and I asked if they could give him something for his headache and something to calm him down.
I don't even know the series of phone calls I made. I remember calling Aaron, Scott's best friend in Jupiter, my mom and Brandi. Brandi showed up in minutes. I saw Tex from (Texas Roadhouse) walk by the room , his son is an ER doctor. I remember telling him his son wasn't on call today and he said he was there to see me. Confused, I asked him how he knew I was there and he said my mother had called the church. Then walked in Dr. Alfant, he had left his office to come by to see if I needed anything and to give me a hug. Then it seemed like my mom, my sister and Aaron had just appeared in the room.
They began to bring in Mannitol, it is a sugar alcohol solution that reduces brain swelling. I said to the nurse that I thought Mannitol had to be given over a three day period. The nurse said not in a situation like this. The Mannitol was given within an hour and a half. They asked Scott how his headache was, it was no better. So they administered another glass jar of the Mannitol.
The neuro surgeon on call is the best in Brevard County. He walked in and said that Scott was going to die. He said, Astrocytoma patients live about 15 years and Scott was at his 15 year mark. He said , we can do the surgery but he doesn't even know if Scott would survive it. If he does survive then we could be right back where we are in four days, Scott could end up paralyzed or blind. Scott had heard every word and began to cry. I gave the surgeon Dr. Nicks cell phone number and asked him to call him. The odds were against us. I think I was in a state of shock and I was faced with a decision that could end or possibly change the rest of Scott's life. I began to wonder if I was being selfish in wanting to keep Scott here, what would be his quality of life, did I want him to suffer more chemo treatments etc...I walked out of the room broke down. I didn't feel as those things were going to be okay but, I didn't want Scott to be scared, so I told him he was going to be fine.
I then looked at Scott's friend Aaron, what do I do? Aaron stood over Scott and took his hand - I don't know what was said all I know is Scott said "surgery". I then stepped outside the room to call Dr. Nick on his cell phone. I asked him what to do. I told him what the surgeon said and Dr. Nick said "do the surgery". I told the surgeon we would go ahead with surgery. They brought all the papers in for me to sign but, before I signed them I looked at Aaron one more time and he nodded yes. It seemed like seconds after the papers were signed that Scott was taken to the pre-op surgery room. The nurse from the ER came up with tears in her eyes gave me a hug. As they took Scott to surgery, they pointed to a hall way at the end of that hall way was where the surgical waiting room was. I looked at it, the more I walked the longer it got. I remember sitting down in the hallway and crying. A nice lady walked by and asked me if she could give me tissues. A social worker asked me if she could call someone for me. My friends and family was there - but, I felt so alone. I looked up and Michelle, Karen and Doreen seem to just appear. After being in the hallway for awhile, I decided to go in the waiting room and wait. I wanted to be with Aaron because that was the closest I felt to Scott.
After the surgery Dr. T. came in and said he had removed as much tumor as he could. Scott wasn't on a ventilator , he was making swallowing noises and let's see if he wakes up. I had received a phone call on my cell phone from Tex giving me Scott's room number, his son had followed Scott through the computer and was relaying information to him. We all stayed at the hospital until Scott was out of recovery and taken to his room in SICU. I wanted everyone that had stayed the duration of the long emotionally and physically day be able to see Scott. It was hard for me to leave that night but, I knew there was nothing I could do there and they were not budging on the visiting hours.
Blood was coming from his mouth and when I rolled him over his eyes were open but, he was dazed, non responsive and he had started to posture. I picked him up and put him on the bed and began to pack for a trip to MD Anderson. Something kept telling me not to put Scott in the car and drive to Orlando. I called 911 to take him to Holmes and thought once they checked him out there then I would drive him to Orlando.
I never imagined the seriousness of his condition. They took a CT scan and the emergency room doctor came in with the results. He looked at me and said I am not going to sugar coat it for you. The swelling in the brain had began to invade the other side of the brain, the mid line shift had shifted 15 mm, there was bleeding on the brain and the spinal fluid had began to collect on top of the brain. Scott was going to need emergency brain surgery. Scott had a horrible headache and I asked if they could give him something for his headache and something to calm him down.
I don't even know the series of phone calls I made. I remember calling Aaron, Scott's best friend in Jupiter, my mom and Brandi. Brandi showed up in minutes. I saw Tex from (Texas Roadhouse) walk by the room , his son is an ER doctor. I remember telling him his son wasn't on call today and he said he was there to see me. Confused, I asked him how he knew I was there and he said my mother had called the church. Then walked in Dr. Alfant, he had left his office to come by to see if I needed anything and to give me a hug. Then it seemed like my mom, my sister and Aaron had just appeared in the room.
They began to bring in Mannitol, it is a sugar alcohol solution that reduces brain swelling. I said to the nurse that I thought Mannitol had to be given over a three day period. The nurse said not in a situation like this. The Mannitol was given within an hour and a half. They asked Scott how his headache was, it was no better. So they administered another glass jar of the Mannitol.
The neuro surgeon on call is the best in Brevard County. He walked in and said that Scott was going to die. He said, Astrocytoma patients live about 15 years and Scott was at his 15 year mark. He said , we can do the surgery but he doesn't even know if Scott would survive it. If he does survive then we could be right back where we are in four days, Scott could end up paralyzed or blind. Scott had heard every word and began to cry. I gave the surgeon Dr. Nicks cell phone number and asked him to call him. The odds were against us. I think I was in a state of shock and I was faced with a decision that could end or possibly change the rest of Scott's life. I began to wonder if I was being selfish in wanting to keep Scott here, what would be his quality of life, did I want him to suffer more chemo treatments etc...I walked out of the room broke down. I didn't feel as those things were going to be okay but, I didn't want Scott to be scared, so I told him he was going to be fine.
I then looked at Scott's friend Aaron, what do I do? Aaron stood over Scott and took his hand - I don't know what was said all I know is Scott said "surgery". I then stepped outside the room to call Dr. Nick on his cell phone. I asked him what to do. I told him what the surgeon said and Dr. Nick said "do the surgery". I told the surgeon we would go ahead with surgery. They brought all the papers in for me to sign but, before I signed them I looked at Aaron one more time and he nodded yes. It seemed like seconds after the papers were signed that Scott was taken to the pre-op surgery room. The nurse from the ER came up with tears in her eyes gave me a hug. As they took Scott to surgery, they pointed to a hall way at the end of that hall way was where the surgical waiting room was. I looked at it, the more I walked the longer it got. I remember sitting down in the hallway and crying. A nice lady walked by and asked me if she could give me tissues. A social worker asked me if she could call someone for me. My friends and family was there - but, I felt so alone. I looked up and Michelle, Karen and Doreen seem to just appear. After being in the hallway for awhile, I decided to go in the waiting room and wait. I wanted to be with Aaron because that was the closest I felt to Scott.
After the surgery Dr. T. came in and said he had removed as much tumor as he could. Scott wasn't on a ventilator , he was making swallowing noises and let's see if he wakes up. I had received a phone call on my cell phone from Tex giving me Scott's room number, his son had followed Scott through the computer and was relaying information to him. We all stayed at the hospital until Scott was out of recovery and taken to his room in SICU. I wanted everyone that had stayed the duration of the long emotionally and physically day be able to see Scott. It was hard for me to leave that night but, I knew there was nothing I could do there and they were not budging on the visiting hours.
Thursday, May 21, 2009
Post Op Update
We saw the surgeon today. The speck in the brain is metal. If Scott were to have an MRI it would at like a swizzle stick in the brain. MRI's are out for now and the future. This worries me because MRI's are a way of showing progression and regression in this disease. So Dr. Nick is going to have to convince me CT's are OK.
The surgeon said that Scott has exceeded his expectations. He was thrilled to see Scott walking with a cane. I told him while I was trying to comprehend everything I was watching his body language and I didn't think he wanted to operate on Scott and he said he didn't. He didn't have any hope. I thanked him for doing the surgery. He apologized for the metal that was in there but, I told him it was a small price to pay for saving Scott's life.
Dr. Nick said that after reviewing the post op CT scan that there is a mild hemorrhage and we wouldn't be able to began the Avastain for now. The Avastain can cause hemorrhaging, so if there is already mild hemorrhaging it will only progress. Dr. Nick has a new game plan and we are waiting to hear from the nurse. It still involves chemotherapy.
The surgeon said that Scott has exceeded his expectations. He was thrilled to see Scott walking with a cane. I told him while I was trying to comprehend everything I was watching his body language and I didn't think he wanted to operate on Scott and he said he didn't. He didn't have any hope. I thanked him for doing the surgery. He apologized for the metal that was in there but, I told him it was a small price to pay for saving Scott's life.
Dr. Nick said that after reviewing the post op CT scan that there is a mild hemorrhage and we wouldn't be able to began the Avastain for now. The Avastain can cause hemorrhaging, so if there is already mild hemorrhaging it will only progress. Dr. Nick has a new game plan and we are waiting to hear from the nurse. It still involves chemotherapy.
Wednesday, May 20, 2009
Two Steps Forward One Step Back
Our appointment with Dr. Nick went great. Scott and I agreed because of the walking it would be a good idea for him to be in his wheelchair. When Dr. Nick walked in he assumed Scott could not walk so when Scott stood from his wheelchair and walked across the room independently, Dr. Nick's face lit up. He told Scott how great he looked and was over all amazed. The cause of Scott's domino effect was just that a domino effect from small things that added up after a period of time. We are still going to go with our same game plan as before with the Avastin , Sorafenib and add a special cocktail of drugs along the way. Scott has gained 6 more lbs and he hasn't been home a week. Dr. Nick agreed that eventually the brain surgery had to be done, to help relax the brain. He was sorry that it was done under the circumstances it was. But, is pleased with the results. Dr. Nick wants a base line MRI and we will go from there.
We had an appt. for a MRI today and they thought as a safety precaution that a CT scan should be done first. The CT Scan shows by the skull cage a speck of metal. The metal has to be non ferrous or by placing Scott in an MRI can cause the metal to move slicing through the brain. The radiologist is trying to reach the surgeon. So we will have to wait......
We had an appt. for a MRI today and they thought as a safety precaution that a CT scan should be done first. The CT Scan shows by the skull cage a speck of metal. The metal has to be non ferrous or by placing Scott in an MRI can cause the metal to move slicing through the brain. The radiologist is trying to reach the surgeon. So we will have to wait......
Monday, May 18, 2009
Beginning Stages of Recovery
Scott did really well this weekend. He spendt most of the weekend, resting, relaxing and enjoying being home. He is doing great with the use of his quad cane and seems to have the wheelchair mastered. Every movement just has to be slow. I am anxious to get the bench in for the shower I ordered, I think that will make it allot easier on showering.
I premade meals so he could have yummy food while I am at work. Before I left work this morning, I placed them in the oven to keep them warm. I just hope the heat doesn't dry them out. Scott was up this morning at 4:30 so I brought him an Ensure to drink. I have no complaints, he's a great patient and a great husband. Sunday he treated Michelle and I to a facial at Essentials. We had mimosa's while waiting for our esthetician. It was a little piece of heaven.
Milo has become very protective of me and every chance he gets he weasels his way in between us and places his paw on my chest. If Scott reaches over to touch me Milo takes his paw and tries to remove Scott's hand.
The nurse from Sea Pines will come today to assess Scott and to set up physical therapy. We have an appointment Wednesday with Dr. Nick and an appointment sometime this week with Dr. T. It is going to be a busy crazy week.
I premade meals so he could have yummy food while I am at work. Before I left work this morning, I placed them in the oven to keep them warm. I just hope the heat doesn't dry them out. Scott was up this morning at 4:30 so I brought him an Ensure to drink. I have no complaints, he's a great patient and a great husband. Sunday he treated Michelle and I to a facial at Essentials. We had mimosa's while waiting for our esthetician. It was a little piece of heaven.
Milo has become very protective of me and every chance he gets he weasels his way in between us and places his paw on my chest. If Scott reaches over to touch me Milo takes his paw and tries to remove Scott's hand.
The nurse from Sea Pines will come today to assess Scott and to set up physical therapy. We have an appointment Wednesday with Dr. Nick and an appointment sometime this week with Dr. T. It is going to be a busy crazy week.
Saturday, May 16, 2009
Baby I'm Coming Home
I brought Scott home today. I wheeled him in the house and went back out to get his cane and he had already wheeled himself in the kitchen. I had Joe put in an under the counter glass front beverage cooler so Scott would be able to get drinks and cold snacks if I were not home.
Scott ate a fresh spinach salad , roast, stuffing , peas , ice cream and thin mint cookies for dessert. Later, I hope he will drink and Ensure for a snack.
Later, I helped him in the shower and soaped him up and stood there while he got all the soap off him. I put his shoulder brace back on and then he stood while he brushed his teeth. I thought I would be really nervous but, he seems to have it down. He is not over confident but, is very cautious.
Milo is glad to have Scott home. Scott is sleeping and Milo is sleeping on his shoulder.
Scott ate a fresh spinach salad , roast, stuffing , peas , ice cream and thin mint cookies for dessert. Later, I hope he will drink and Ensure for a snack.
Later, I helped him in the shower and soaped him up and stood there while he got all the soap off him. I put his shoulder brace back on and then he stood while he brushed his teeth. I thought I would be really nervous but, he seems to have it down. He is not over confident but, is very cautious.
Milo is glad to have Scott home. Scott is sleeping and Milo is sleeping on his shoulder.
Friday, May 15, 2009
Deployment Approaching
I received a call from Blake tonight, he gave me a date for block leave. My heart begin to flutter when I asked him if he was being deployed. Blake said I didn't say anything about being deployed but, as a mom I felt it. His deployment will last for 12 months.
I then sat down and month by month started to realize the things we will miss throughout the year. Blake will miss Skylar turning 6. We will all miss the Thanksgiving and Christmas holidays. Blake and Kellie will miss their first wedding anniversary. We will miss birthdays.
My heart is aching. Every time I see or hear that another US Soldier has been killed I stop. I look at the TV and I wonder if the news is being reported before the family has been contacted. How hard it must be for the family of the soldiers that are so far from home. Now when I hear about another life of a US soldier, that's life has been taken ,I will wonder if it is my son.
I then sat down and month by month started to realize the things we will miss throughout the year. Blake will miss Skylar turning 6. We will all miss the Thanksgiving and Christmas holidays. Blake and Kellie will miss their first wedding anniversary. We will miss birthdays.
My heart is aching. Every time I see or hear that another US Soldier has been killed I stop. I look at the TV and I wonder if the news is being reported before the family has been contacted. How hard it must be for the family of the soldiers that are so far from home. Now when I hear about another life of a US soldier, that's life has been taken ,I will wonder if it is my son.
One More Day
Scott comes home tomorrow. I have done a couple things in the house to make things easier for him. I even ordered a personal oxygen bar that increases the concentration of oxygen by 30% helping to relax and reduce stress. It even has a speaker that plays up to four different soft musical patterns. I bought this for two reasons, I thought it would help with the healing of Scott's brain and I thought it would be good for my skin.
I am looking forward to him being home but, also know the recovery is going to be slow. I am still waiting for a call from Dr. Nick's office to see what day next week I take Scott to see him. Everyone is more than welcome to visit Scott at home. He would probably Welcome the company.
Thank all of you for your prayers. Please don't stop praying.
I am looking forward to him being home but, also know the recovery is going to be slow. I am still waiting for a call from Dr. Nick's office to see what day next week I take Scott to see him. Everyone is more than welcome to visit Scott at home. He would probably Welcome the company.
Thank all of you for your prayers. Please don't stop praying.
Thursday, May 14, 2009
Physical Therapy
I went to physical therapy on Wednesday to practice some things with Scott. It was the first time I had seem him walk after surgery. He takes baby steps, with the quad cane but does really well. I think he just needs to strengthen the left side. His transfer from the wheelchair to bed or couch was good. They are sending him home on Saturday with a wheelchair ,quad cane and strict instructions not to be out of the wheelchair if I am not there.
I learned how to help Scott safely up from the chair, transfer into the car etc. Physical therapy will come to the house three days a week to work with Scott. Both Scott and myself are nervous for him to be home, me more so then him but, I do think it will be good for his spirit.
My heart goes out to the families of the patients at Sea Pines , I know I could have been in the same position they are. I am so thankful I am not. From the beginning I have looked at all the blessings Scott and I have been given through such a dark time in our lives.
Later, I will post what happened that sent everything into this tail spin.
I learned how to help Scott safely up from the chair, transfer into the car etc. Physical therapy will come to the house three days a week to work with Scott. Both Scott and myself are nervous for him to be home, me more so then him but, I do think it will be good for his spirit.
My heart goes out to the families of the patients at Sea Pines , I know I could have been in the same position they are. I am so thankful I am not. From the beginning I have looked at all the blessings Scott and I have been given through such a dark time in our lives.
Later, I will post what happened that sent everything into this tail spin.
Wednesday, May 13, 2009
The Man I Love
Scott and I had a wonderful dinner last night. I had picked up Olive Garden and even found a cake similar to wedding cake. Michelle helped Scott out. She made a card with our wedding picture on it and left the inside blank for Scott to write. Michelle has become Scott's little elf. He's is lucky because no one knows me better than her.
As Scott and I were having dinner , he was telling me about a guy in therapy and how he is really stroked out. When Scott's nurse came in Scott asked for the guy's name. But because of hippa she was unable to give it to him. The wife on the man walked in and said to Scott I heard you wanted to know my husbands name. Scott said yes, every night I pray for the people in here and I want to pray for your husband by name. She said his name is Steve and he had an aneurysm. Scott told her Steve would be in his prayers every night.
When I got home I received a phone call from a man I had grown up with. We used to hold hands and roller skate. I think we were six. Anyway, he was checking on Scott and says him and his boys pray for Scott every night. It means so much to me for so many people to be praying. I so believe in the power of prayer.
As Scott and I were having dinner , he was telling me about a guy in therapy and how he is really stroked out. When Scott's nurse came in Scott asked for the guy's name. But because of hippa she was unable to give it to him. The wife on the man walked in and said to Scott I heard you wanted to know my husbands name. Scott said yes, every night I pray for the people in here and I want to pray for your husband by name. She said his name is Steve and he had an aneurysm. Scott told her Steve would be in his prayers every night.
When I got home I received a phone call from a man I had grown up with. We used to hold hands and roller skate. I think we were six. Anyway, he was checking on Scott and says him and his boys pray for Scott every night. It means so much to me for so many people to be praying. I so believe in the power of prayer.
Monday, May 11, 2009
Happy Anniversary
Happy Anniversary Baby. These have been the best years of my life. I love you with all my heart
Saturday, May 09, 2009
Scott May Be Sprung
Scott has a discharge date of May 16, a week from today. I am ready for him to be home but, wonder if it is premature. I will attend one of Scott's physical therapy sessions next week to see if I am as comfortable as Sea Pines is for Scott to be home alone.
I will have to call Dr. Nick on Monday to make an appt. for the week after next. I dread that appointment but, know it's something we have to face.
Our picnic was fun. Scott was glad to get out of his room for awhile. Skylar did a great job on wheeling Pappy around. When we went back inside Skylar looked at me and said this is so sad and then she leaned over and said it was sad that pappy was in the hos-i-pool. I told her he was getting better but, she said again it's just so sad. On the way home she must have been on a sugar high because she was telling the joke about why the chicken crossed the road and then she would laugh. It was funny because she thought it was funny.
I will have to call Dr. Nick on Monday to make an appt. for the week after next. I dread that appointment but, know it's something we have to face.
Our picnic was fun. Scott was glad to get out of his room for awhile. Skylar did a great job on wheeling Pappy around. When we went back inside Skylar looked at me and said this is so sad and then she leaned over and said it was sad that pappy was in the hos-i-pool. I told her he was getting better but, she said again it's just so sad. On the way home she must have been on a sugar high because she was telling the joke about why the chicken crossed the road and then she would laugh. It was funny because she thought it was funny.
Thursday, May 07, 2009
Spiritual and Medical Review
Michelle picked up Milo and took him to the dog park so I could visit with Scott. It was great not to have to worry about him. Geri has also been helping out during the day with Milo. Pastor Loomis stopped by to see how Scott was. We had a nice visit. I walked out with Pastor Loomis and talked with him for awhile in the breezeway. He assured me that it is okay to feel the way I am feeling.
I heard from Dr. Nick today and they (MD Anderson) reviewed the pathology slides today but, not the scans. They have set up some chemo strategies. Dr. Nick wants to see Scott in 2-3 weeks and we will go from there. I was looking forward - not looking forward, really don't want to know, need to know about Scott's scans and pathology slides today. Now that Dr. Nick texts me it has only made me more nervous.
I heard from Dr. Nick today and they (MD Anderson) reviewed the pathology slides today but, not the scans. They have set up some chemo strategies. Dr. Nick wants to see Scott in 2-3 weeks and we will go from there. I was looking forward - not looking forward, really don't want to know, need to know about Scott's scans and pathology slides today. Now that Dr. Nick texts me it has only made me more nervous.
Wednesday, May 06, 2009
Happy Sick Day
I called Skylar to ask her if she wanted to have a picnic with me, Michelle and Pappy on Saturday. She said yes and that we needed a picnic basket and a blanket. I told her I have both of those and then she said we needed a strawberry cake. I am guessing she said strawberry because every time I pick her up her and pappy get milkshakes, she gets vanilla and pappy gets strawberry. Anyway, she wants a strawberry cake with six candles. I told her it wasn't pappy's birthday and she said it was his happy sick day and we have to sing to him. Oh and the cake has to look like a boy cake cause pappy is a boy.
I'll guess I wait to see what else Skylar wants to add to the menu.
Skylar asked me if they are going to teach pappy to run : ( because she loved when he used to chase her.
Scott is doing really well and has already gained 7.5 pounds. He has asked them to double his food portions.
I'll guess I wait to see what else Skylar wants to add to the menu.
Skylar asked me if they are going to teach pappy to run : ( because she loved when he used to chase her.
Scott is doing really well and has already gained 7.5 pounds. He has asked them to double his food portions.
Tuesday, May 05, 2009
Where's My Boy
I took Milo to visit Scott yesterday. As soon as Scott saw Milo he said " Where's Daddy's Boy"Scott had Milo do all his tricks for the nurse. It was a good visit but, a short one. We had arrived right before dinner and I didn't want Scott's dinner to get cold. We took him Ginger Snap cookies from Sue Ann"s Bakery and little things from home. But, I totally for got his wedding band that he keeps asking for.
Scott looks really good. Yesterday was his first day of therapy and he said it went really well. He has an appt. today to have his sutures removed. I am anxious to see his wound without the sutures.
Scott looks really good. Yesterday was his first day of therapy and he said it went really well. He has an appt. today to have his sutures removed. I am anxious to see his wound without the sutures.
Sunday, May 03, 2009
Weekend
Saturday, between trying to get rid of a headache and battling with exhaustion I just couldn't get motivated. I finally got out of bed at 1:00 got dressed and went to hang out with Scott for a few hours. I then had alittle day light left to get a couple things done in the yard.
Sunday, my mom drove up and we went to hang out with Scott for about 4 hours. For those that want to visit Scott's therapy schedule if from 10-3.
When we got home I decided to wash and wax my truck. Scott looks at that as therapy, I look at that as work.
Scott and I then played phone tag with Amazing Race. It's the little things that make me miss having him home. For those of you who watch amazing race, you know those black girls deserved to go home for stopping to go to the bathroom knowing the race was that close.
Tomorrow Milo has to be crated while I work : ( He has never been crated for so long. I feel like a terrible mommy.
Sunday, my mom drove up and we went to hang out with Scott for about 4 hours. For those that want to visit Scott's therapy schedule if from 10-3.
When we got home I decided to wash and wax my truck. Scott looks at that as therapy, I look at that as work.
Scott and I then played phone tag with Amazing Race. It's the little things that make me miss having him home. For those of you who watch amazing race, you know those black girls deserved to go home for stopping to go to the bathroom knowing the race was that close.
Tomorrow Milo has to be crated while I work : ( He has never been crated for so long. I feel like a terrible mommy.
Saturday, May 02, 2009
A+ Patient
Scott is already eating everything they place in front of him and has already gained a pound only 49 more to go. We are not sure if he will regain the use of his hand, the odds are not good. But, the odds haven't been good so far and he has proved them wrong. Dr. Addington has an office adjacent to Sea Pines and told Scott he can take him there and test can be done to run current through the arm and hand to see how much damage there has been. They call Scott superman. I call him a miracle. The therapy room is huge. He has a workout schedule beginning at 10:00 and not ending until 3:00. The only day of rest is Sunday - just like the good lord wanted it.
Friday, May 01, 2009
Move Successful
Scott has officially moved to Sea Pines Rehabilitation Hospital. His room number is 209. He says the rooms are amazing. The food is great. Sounds like he is on the road to recovery. We can take Milo for visits in the courtyard. Milo will be so happy to see Scott. I am sure he is so confused, he has been at Skylar's for a week now. I think I will pick him up today.
I made a male patient cry today with mine and Scott's story. He said, that God puts people in paths for a reason and he will add us to his church's prayer list. As he was leaving he said that he couldn't hardly look at me without getting choked up and what a strong woman I was. I explained to him I have my breakdowns and my doctor has me on medication anyway that could be helping. He patted me on the back as he left. This was the first time this patient was in our office and I have no idea how Scott came up. It's nice to see guys with emotion.
I made a male patient cry today with mine and Scott's story. He said, that God puts people in paths for a reason and he will add us to his church's prayer list. As he was leaving he said that he couldn't hardly look at me without getting choked up and what a strong woman I was. I explained to him I have my breakdowns and my doctor has me on medication anyway that could be helping. He patted me on the back as he left. This was the first time this patient was in our office and I have no idea how Scott came up. It's nice to see guys with emotion.
We're Moving
Scott will be moved today to Sea Pines. He will be an in house patient until he can walk independently and have regain usage on the left side. After the surgery the left side is extremely week. He walked yesterday with a little bit of assistance.
After rehab we will see Dr. Nick to see what our next step is. I packaged all the CT and MRI's and the pathology slide and mailed it next day to Dr. Nick so as soon as he gets a chance to look at them he'll let me know. He and I have been texting back and fourth, with an occasional phone call since all this began.
After rehab we will see Dr. Nick to see what our next step is. I packaged all the CT and MRI's and the pathology slide and mailed it next day to Dr. Nick so as soon as he gets a chance to look at them he'll let me know. He and I have been texting back and fourth, with an occasional phone call since all this began.
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