Scott's Boo Boo

My Afternoon - Evening Visit

I decided to call it an early night at the hospital. Scott and I both were exhausted. . Pastor Loomis thought it would be good for both Skylar and Scott for her to come to the hospital. I guess it was good because I had run out of excuses to why I couldn't pick her up. When Skylar walked in the room she immediately jumped in my lap and asked a million questions. When the nurse came in to prick Scott's finger for a sugar test, I explained to Skylar what they were doing and she told the nurse he has allot of sugar. The nurse came in and I had moved to the other side of the bed. The nurse took his bandage off and Skylar said he looked like a football and I looked up at Scott's head and he is stitched like a football. I gave her ice cream and we sat and talked. Uncle Blake told her it was time to go and she got off my lap gave me a kiss and left.

Physical Therapy came in and Scott walked with a walker. I watched is feet as he walked and he did really well.Dr. T walked in and asked Scott if he was ready to go home. Scott looked like a kid in a candy store. I quickly said he can't go home and luckily the physical therapist agreed with me. Scott will go to a in house place that has physical therapy until he recovers.

Love Notes

I wanted everyone to know when I go see Scott that each love note that is posted I tell him about. He is able to pull up everything on his iphone so he knows of your thoughts and your prayers if it is posted. Scott and I are both grateful for all your thoughts and prayers. Thank you all for being there if only in a prayer.

3:00-8:30 Visit

I went to visit Scott after work. Each day I see in he looks better. Dr. T. came in today when Scott was in x-ray. I thanked him again for saving Scott's life. Dr. T. then said he was pretty hard on me in the emergency room and I agreed. He said he really didn't think Scott would make it because he had lost a few like Scott. He said that when Scott became nausea's after surgery he thought he was done for sure. Dr. T. is blown away by Scott - he even broke a smile.I said to my mom that I hope Scott's grave condition gave Dr.T. a new outlook for his next hopeless surgery.
After Dr.T. left the room I realized that I have never moved from the Emergency room. I feel like I am still there. This has been a nightmare and I can't seem to shake it.

Evening With Scott

After work I went to see Scott. I gave him a facial included with a mud mask. I asked him if he would be embarrassed if someone walked in to visit and he said no. Wouldn't you know it Dave and Beth walked in to visit. Scott got beautiful yellow roses. Scott has hook ups all over town. Kim from Cantina brought him a chicken and spinach enchilada and salsa and chips. Doreen's husband brought Scott a gourmet menu, he'll be having steak for dinner tomorrow night.
I did get a chance to speak to Dr. Gold, Scott's neurologist. He said he is anxious to hear what Dr. Nick has to say. Dr. Gold seems to think there was a small bleed and things got out of hand. Maybe the tumor, swelling & a small bleed does not mix. I have had an overwhelming amount of support. Thank all of you - it means so much.

It's Amazing

After I posted tonight's post I went through and read my love notes. I had notes from people that I didn't even know had the blog address. I can not thank each of you enough for all your prayers and support. Thank all of you that have offered to help in anyway. Scott and I are so grateful for our friends. Please don't stop praying.

evening Visit Update

Scott new room number is 702A. I took up shaving cream and a razor he let me shave him and I washed him up and put lotion on him. They are tracking a vein that they pushed Phenergan anf Dilantin through. He still seem to be in good spirits.

Visit from 2-4

Scott didn't eat lunch but, he did eat ice cream for me. He said he had a headache which makes me extremely nervous. Your first thought isn't Tylenol but is a cat scan. I know we can't live our lives on pins and needles but, I think that is the way it maybe for awhile.

SICU to ICU

Scott is doing really well. He cried and said it was the clearest his head has felt in months. He said he had a normal headache, the ones that he could take 2 Tylenol. They are going to get him up to walk today and plan on moving him from SICU to ICU. I will be going back to work tomorrow but, will leave for my visits with Scott. There is nothing I can do at home and I hate watching the clock for my next visits. Keep praying

8:00 Visit Update

Thank you all who are praying, please continue to pray I think they are working. My evening visit with Scott was better than my afternoon visit. He felt he ate more applesauce and vanilla ice cream. Without thinking I gladly opened it up to feed him. He took his glowing finger and pointed it at Brandi and was making ET noises. We cut our visit short so he could get some sleep. Tomorrow they are going to try to get him on his feet.

Update 2-4 Visit

I just got back Scott seems to be better. The nausea seems to be under control. He still has allot of emotions. He didn't seem to be as agitated. I brushed his teeth, I washed his face and to help keep his wrist straight I put his wrist brace on. He showed me he could lift his leg up a little bit. He stroked my face with his hand for the first time. I am trying not to feel anything good or bad because I don't know what to expect from one visit to the next.

Update from 9:00 Visit

What an emotional roller coaster. I just got back from the hospital, Scott is still really nauseous, agitated and exhausted. I just heard from the nurse and they think Scott maybe having withdrawals from the Nerontin. They finally got him to swallow the Nerontin and they had Topomax in sprinkles form. They are giving him Dilantin through his IV. Please don't stop praying.

Update 2-4 Visit

Scott's color looks good but, he is so nauseous. The nurse thought since Scott drinks so much Mt.Dew that that would make him feel better. I went to the vending machine, asked for straws and gave Scott a few sips. I think that made it worse. He is so miserable that I decided to let him rest. Aaron drove up from Jupiter and I thought if I left he would be able to stay longer. Blakeand Kellie land in Orlando at 5:30. They are not suppoe to be as strict on the evening hours as they are during the day. Hopefully, he'll feel better tonight.

Update From 8:00 Visit

Forgive me if I repeat myself from post to post. Everything is a blur. The surgery was to save Scott's life. We didn't know if it would leave Scott paralyzed on the left side. Scott was responsive this morning. His head hurt but, whose wouldn't. I told him Blake was on his way and he began to cry and ask why. I told him he had brain surgery and Blake took early leave. I told him he was fine and he had been though the worse part. I hope I am right. I rubbed his arm and asked if he felt it and he said yes. This is good news. He has compression cuffs on both legs and he feels them too. Dr. Nick says we are on a good path for something so dangerous. He said to focus on the positive, recuperation and rehab , we'll worry about the RX later. Please continue to pray for Scott. We are not out of the woods yet.

Scott Update

Thank you Michelle for the early blog. Emergency surgery had to be done to save Scott's life. He didn't have alot of time and quick decision had to be made. The hardest decision I ever had to make. Sorry Aaron I looked to you to help me make a decision that could change the rest of Scott's life.
Scott survived the surgery, he is off the ventilator, it is to soon to tell anything. Scott is in SICU.A CT scan will be done tomorrow and we will go from there. We don't know what the paralysis is yet and may not know for awhile. Scott looks good and seems to have good color.
I have contacted the Red Cross to have Blake & Kellie home on Emergency leave.
Please continue to pray, pray and pray

Keep Scott in your Prayers

This is Dalana and Scott's friend Michelle, I am writing on this without the knowledge of either of them. I wanted to let everyone know that Scott was rushed to the hospital early this morning. He has swelling and bleeding on the brain and they more than likely are going to have to do surgery on Scott. I don't have anymore information than that right now. I know Dalana would want to keep you all updated on what is going on with Scott. I know this blog is probably not Dalana's first priority right now so I will updated it as I find out more information. I know that all of you love and care deeply for Scott and Dalana as much as I do so please keep them both in your thoughts and prayers.

Frustrated With Brevard County Medical

I phoned Scott this morning before my post to find out how he was. He said he felt OK. The next call I got he had called 911. He said all of a sudden he got really sick. I left work and met them bringing Scott down the hallway. I called Dr.P's office to see where he had hospital privileges, Cape Canaveral and Wuesthoff in Rockledge were the two. I had them take him to Cape Canaveral and I called Dr.P's office to tell them Scott was in transient. I was at Cape Canaveral shortly after Satellite left.
When the doctor showed up I gave them Scott's medical history, the drug he was given on Thursday, what had happened on Monday. I gave him Dr. Nick's cell phone number and Dr. P's number. Cape Canaveral's MRI was down - that should've been my first clue. They spelled Scott's last name wrong - I corrected that and then the had his birthdate wrong and corrected that. The doctor ordered a cat scan to rule out a hemorrhage and he ordered numerous blood test. I explained those blood test he ordered were done in Dr. P's office on Monday but, he continued with the test. Okay we were there so why not check out everything. The doctor came in and said he spoke with Dr. Nick and Dr. Nick ask him to give Scott a steroid shot and asked Scott if that was okay. If that was what Dr.Nick wants yes then give Scott the steroid. The doctor explained he didn't know what else to do because this wasn't his niche. Not his niche, so he was sending Scott home. Dr.P never even phoned. I decided there were to many doctors in the mix and it was time to return to MD Anderson where Dr. Nick is upstairs. If I need to take Scott to the hospital in Orlando than that's what I have to do. The drive is longer than what it takes o administer the Avastain but, it is worth the drive.

No News Is Good News Right?

Scott says he is feeling better but, still has no energy. I am waiting to see if he is able to get out of bed today and move around. If he doesn't then I'll have to call Dr. P. to see if he can give him a steroid shot. They normally give the shot but, we opted not to because of the fact that of the dex.
that Scott took orally for so long deteriorated the muscle's in the shoulder and hip. We may have no choice then to go for the steroid shot if Scott can't seem to have enough energy to get out of bed.

I am entertaining Flat Stanley that was sent to me by my niece, Kylee . Flat Stanley is a book character that had been flattened by a bulletin board. Flat Stanley is put in an envelope when he wants to visit. My job is to be a gracious host and show him around. Then mail the teacher photos and a letter with his adventures on the Space Coast.

Sleeping Beauty

Scott's finally resting. I phoned Scott from work to let him know not to call the oncologist because I already had a call into him. Scott hasn't felt good all weekend, he's been nauseous, has had a headache etc. I remember the doctor saying the Avastin didn't have any side effects so I decided to call to see if Scott should take his Zofran and about the pressure in his head and his headache. The doctor wanted to see Scott, so I phoned home to tell Scott to be ready and I would pick him up in a little over an hour. I went to pick up lunch for the office and Michelle called me on my cell phone to tell me to call Scott. I dropped off lunch and headed home. I walked through the door and Scott was white as a ghost. I helped him put on his shoes and out the door we went. When Scott got through the door he got really sick. I don't know if it was going from the inside to outside but, he began o throw up and he didn't think he could make the drive. I phoned the doctors office to tell them that I was calling 911 to have him taken to the hospital but, by the time they had gotten back on the phone, I had Scott in the truck and was on my way there.
On our way there (I'll spare the details) Scott got really sick. We arrived at the office and they took Scott back right away. The doctor came in Scott was clammy, he was white and his head was hurting so bad that I turned off the lights in the room. The doctor seemed to be in somewhat of a panic. He said Avastain doesn't have any side effects. He ordered a bag of sodium, Demerol and phenergan and numerous blood test. The nurse with the Demerol became Scott's new best friend. My poor sick baby : ( The Demerol took effect right away but, made Scott goofy.
Dr. P. said if it happens again tomorrow Scott will have to have an MRI to see what is happening in his brain after the Avastain.
His conclusion today was the Avastain must have aggravated the chemistry in the brain.
I came home to find Michelle there to see what she could do to help. I even had Cold Stone in my freezer. I have the best friend.
I drooped Scott off to sleep and headed to Melbourne to pick up his meds. Hopefully, all will be calm tomorrow.

A Sister's Love

This is my sister, Tina and I in the early 70's. We are extremely close but, with two very different personalities. Growing up I was the sneaky one, I thought more about if I did do it and got caught how much trouble I was going to get into. Tina had a different outlook she would do it, if she got caught she would suffer the consequences. I don't know why but, I was terrified of spankings. Tina being the little spitfire she was would take my spankings and I would let her.
Most of you would think that what a horrible older sister I was but, after all I didn't want a spanking and she didn't seem to care, so yeah spank her. The spanking didn't even phase her. Her and I was each other's best friend and then her and I would fight yell, scream, throw things at each other. I could out run her and I did, as she was chasing me to beat me up.

I was talking to Tina last night and she mentioned how when we were kids she would take my spankings and if she could she would take my pain. As I sat there and listen to her words I was speechless. After I hung up her words echoed in my ear. Why would someone want to feel this pain? Then I heard the words that I've heard Scott say all too many times "this is my cross to bare" and I thought I would never want anyone to feel this pain so "this must be my cross to bare"

Easter Recap

I know it's after Easter but this is the first time I have actually had time to sit and blog. Our Easter weekend began with a surprise visit from Blake and Kellie. They were suppose to be in Beech Mountain at Blake's grandparents cabin but, Blake decided he needed to be home and Kellie graciously agreed. Their timing couldn't have been more perfect.
My mom was on her way over for Easter weekend so we planned on meeting Matt & Michelle at Enigma for dinner and to listen to Dave play. Blake excused his self from dinner because he wasn't feeling well. We finished dinner and then enjoyed watching Matt & Kellie play Wii.

Blake had a bug that lasted 48 hours leaving him in bed for Easter. We all were up for Sunrise service (except Blake) Scott wasn't feeling so well during the service so I walked him back to the truck. When we returned home everyone took a nap while I prepared Easter lunch. I had the eggs laid out ready to be dyed. Bunny Brandi had hid the eggs but, not very well and Skylar told her about it. She had her hand on her his when she approached me with the way her mom hid the eggs. Skylar said you can see the eggs, that they were not hid so I had Brandi go out and re hide all the eggs. This time she hid them right according to Skylar. Kellie helped Skylar color the eggs and Tom was disappointed I didn't make deviled eggs. The Easter Bunny brought Scott a Easter basket with a ipod shuffle and cool headphones. Skylar made her own plate. on her plate she placed a peep full of jellybeans and a roll.






Monday he was up and around. While he was visiting friends I came home and cloroxed the house so no one else would get sick. With them Blake and Kellie brought Reggie their new little cocker spaniel puppy.

Tuesday we were going to go to Seaworld. I woke up did my 4:30 am walk over the causeway came back showered got ready for my day. Scott was watching T.V and said I may want to check the weather. Good job Scott . Orlando had tornado warnings out and was covered in rain. We choose to stay home hit Hurricanes for lunch and then to the shooting range.

Wednesday the kids went to Seaworld. I picked Skylar up and tried to bake cookies while making dinner for the kids when they arrived home. I messed up the cookies. I probably forgot something - I put them down the disposal. I even messed up a box mixed brownies. Oh I forgot I was super tired because Blake and Kellie left their puppy in our room for the night and he was up and down all night. I was exhausted the next day.

Thursday Scott had an appt. with the oncologist. The doctor gave him a choice of taking his chemo or waiting until one day next week. We were already there,so why not go ahead. Our appt. was at 1:30 but, we didn't get home until 6:00. I was feeling more rested but not enough to try cookies from scratch again. So I picked up Tollhouse cookies (break & bake) now what was I thinking the night before, this was a piece of cake. I even ended up with beautiful brownies. Blake and Kellie were at a ball game with grandad. I packed a picnic basket for their long journey home.

Friday I had over slept. It was a good thing I phoned Michelle the night before and called off walking. When I woke up I left notes to where things were that needed to be packed in their cooler. I wasn't ready to say goodbye so I headed to work. I was in the back with a patient when I heard Michelle say "he is so cute". I came out front I cried as I hugged them goodbye. I told them they weren't suppose to come by the office and they said they couldn't leave without saying goodbye. In my head yes, the could have. I came home from work and collapsed with exhaustion. I we up Saturday about 10:00. Feeling guilty for sleeping so late, I went to Landscape Depot and bought one ton of Florida River Rock. Wen I got home I put on my work clothes and gloves and loaded the rock piece by piece, where I took each rock and began to trim out the flower beds. Scott sat outside for awhile but, then went back inside.
I unloaded the whole truck , cleaned up my mess.

Sunday, today, I woke up got ready for church. So many people came up to me to see how Scott was and to tell me they were praying. Upon leaving church I called Scott to see if he wanted coffee. While in the Dunkin Donuts line, our normal girl who knows are order all to well, stepped out f the side door with our coffee. Back home I got back in my work clothes to finish up a couple more things I wanted to get done in the yard. Now I am just doing laundry because I know my walk tomorrow is going to kick my butt.

First Treatment

There has been so much to blog about that I haven't had time. Scott and I had an appt. with the oncologist yesterday. Much to our surprise they began Scott's treatment. The chemo pill Sutent is unavailable at our pharmacy so we will have to have it shipped to us through MD Anderson in Orlando. His first treatment took about 2 hours but, the following ones should run alittle quicker.
He seem to handle it well. He felt bloated after the treatment. He did manage to eat a cheeseburger and then home to bed. When he awoke this morning I asked him how he felt and he said he was tired. His next treatment is in 2 weeks.
I am going to keep the house quiet this weekend and hopefully he'll get alot of rest.

The Love Continued To Flow.

Scott and I got up to go to church. While Scott was shaving he felt like he was going to pass out. I walked over where he was laying on the bed and his whole body was clammy. I got him a cool wet rag and when I walked back to the room he had the rag laying on his head and was covered up. He was down for the count. I did leave him, to go to church. I felt so comforted, even through my tears. Without Scott being there, people must have felt more comfortable asking me about him. I was given an ER doctors name to drop if I end up there with Scott by his father. I told him I didn't have a problem dropping a name. Then the pastor came up and when I went to shake his hand, he said I think you need a hug Dalana.
I then came home changed clothes and decided to take some mental therapy time. I made sure Scott was feeling better first. When my phone rang if it wasn't Scott I didn't answer.
Thanks to all of you that have put Scott and I in your prayers.

Here's Where We Stand

As soon as Dr. Nick walked in I knew the news wasn't going to be want we wanted to hear. Dr. Nick asked Scott how he was feeling. Scott explained how he felt off balance, he felt pressure in his head, he had no appetite etc... Dr. Nick then asked if we were willing to travel for a second opinion our options were Boston, Texas , Duke wherever we wanted. Our other option was to began treatment Avastin which is administered through Scott's port and a pill taken by mouth to help fire the Avastin.
I asked Dr. Nick is it the tumor and he said he didn't know and he didn't know if he would ever know. It's the nature of the beast.

Waiting

The only news I have right now is Dr. Nick is running 3 hours behind. You always expect to wait a least an hour but, this is alittle excessive. I guess that is what happens when you are seeing the best of the best. The hospital gave us $5.00 to o have lunch. I would have opted for a pillow and a nap. Can you tell my head is beginning to spin? I'll update as soon as we see Dr. Nick

April Fools

I wasn't going to blog this because some of you wouldn't think this was funny. Michelle and I thought it was really funny. Yesterday Michelle and I put topical ( numbing agent that is used before the injection is givin) around the rim of my bosses drink. Michelle kept saying he doesn't realize it is on there. I told her he probably does, he is not going to tell us we got him.
Today he asked for Michelle and I. I was on the phone with a patient when I had two soapy hands all over my face. I told Michelle I guess he ran out of paper towels. That was not the case. Apparently, he didn't finish his drink from yesterday and he decided to finish it off today. When he picked up his drink his lips were numb again. The light above his head goes off and he realizes the joke that was played on him yesterday. We asked him why he didn't realize it yesterday, he said he did, he thought he was having a stroke. Now if you think you were having a stroke wouldn't you alert your staff?
When I got home I played the same joke on Skylar and Scott. Skylar knew instantly because it is not the first time it has been done to her. She was trying to worn Pappy but couldn't find the words until Pappy took a drink and realized what I had put around the rim of his drink also..

Tomorrows The Big Day

We see Dr. Nick @ 11:30 Friday. We are both ready to get it over with and see what the course of treatment will be. I will take my laptop and for those of you whose phone numbers I don't have I will post a blog. I am also going to pack a bag for the two of us just in case Dr. Nick want's to admit Scott to the hospital. The last couple of times he has had swelling he placed him in the hospital and Scott was administered Mannital . This drugs results are fast but, is slow to administer. I has to be done over a three day period.
On a different note, Skylar starts school this year. I can not believe how 5 1/2 years have flown by. I took her yesterday for her summer haircut and she looks so cute. I have suggest to her dad that she go to school near our home. That way she will not be stuck at a before school and after school child care program. I think that is alittle to much for a 5 year old. If he decides to take me up on my offer my whole afternoon routine will have to change. The dreaded going through the backpacks, making sure homework is done, dinner (the last time I cooked dinner during a weekday my kids were in school) the nightmare is coming back to me. Hopefully, Skylar won't give me as hard of a time as my kids did, she's usually pretty good.