Delimma

Mine and Scott's 10 year anniversary is coming up in May. Every 5 years we renew our wedding vows because we may not have 5 more years. Scott and I planned to renew them in Hawaii this year at Heavens Point but with everything that has happened lately I am not sure if I should continue planning. If we can't go to Hawaii maybe I should bring Hawaii here but, then I am afraid that I can't do everything by myself. I may need to ask for volunteers.

So Glad Christmas Is Over

Scott came home from Sea Pines December the 18th , just in time for Christmas. That in itself was a gift. Things have been slow but steady. They think he may have had a mild stroke. He is getting in home therapy three times a week. Things like walking take longer but, who is in a hurry. He needs to gain weight and we are working on that also.

Christmas Eve we had Skylar, Matt & Michelle over. Everyone seemed to be exhausted except for Skylar. We ate opened gifts and hung out. Matt had gifts to wrap and I still wasn't finished. My mom came over Christmas day and woke us up. I had a few more gifts to wrap. Yes I was up Christmas day wrapping presents. I jumped on line to Thank Blake for fighting there so Skylar could celebrate Christmas here. It was an easy quite Christmas no packing up to run anywhere, we ate when we wanted. I made steak, baked potato and corn on the cob on the grill. Scott thinks we should do that every year. Scott had an excellent elf this year and I loved everything I had gotten although, I don't think I was that good. Thanks to Keri who posted the PNP on her Facebook I had a really good time sending Santa messages to everyone but, Skylar's reaction was the cutest. I had Scott record the Hallmark Twas The Night Before Christmas for Skylar and the next day remembered we forgot to give it to her. I am still finding stocking stuffers ugh..

I am going to spend my New Year putting away Christmas things, going through drawers and closets. I feel so unorganized and I ate that feeling.

Great Weekend

I had a productive/lazy weekend. When Scott went to SeaPines I think my body has collapsed. I can't really find energy to do anything. Michelle called me Saturday to see if I wanted to see the movie Brothers. So I met her and Matt at the Oaks. It was good because it made me actually get up and get some things done before the movie. I decorated for Christmas, I am about 75percent done. We saw the Dr. & the Mrs. at the movies and after the movie we all had an early dinner at Pano Vinos and I order Scott his favorite Chicken dish and went to visit him. When I returned home Skylar called and wanted to spend the night so I drove back to Melbourne to pick her up.
Milo walked the bed all night, almost like he was protecting Skylar. We woke up early went to Dunkin Donuts for coffee and bagels. Skylar had Pappy coffee. That means she had a little coffee with her sugar. It was funny because as soon as she tasted it she did exactly what he does - this needs more sugar. Skylar and I then headed to Target and then to the mall to see Santa. After we saw Santa Skylar and I wanted lunch. So we hit Subway and then went to see Pappy. She was so adorable , her giggles filled the room , what a sweet sound. I then took her home and headed home to do things before I began my week. I don't know how our friend Keri does all she does - I wish I had her energy.

Scott's Residence & An Angel

Scott's temporary residence is Sea Pines room 221. I have sent the images to Dr. Nick and the reports. Sr. Nick BBM me and said the paper report reports everything as stable. He should receive the images today. I asked him if the Abilify he placed Scott on could have caused this problem - I have finally after all these years stumped Dr. Nick. He has no idea but is going to find out and let me know today. Scott seems to be in excellent spirits. I took Milo down for a quick visit yesterday and Milo laid under Scott's wheelchair as if he were protecting him. Hopefully Scott will be home for Christmas if not then we will celebrate when he comes home.

Kellie was at the post office yesterday to mail Blake's guitar and other gifts to Iraq. A kind man in line said he would like to pay for Blake's guitar to be shipped. Kellie hugged the man and thanked him and she said the man had a tear in his eye and he said he served our country and it was nice people were shipping gifts over. He said, for Kellie to thank Blake for him and his wife and for her to Have a Merry Christmas. As a mother of a soldier I needed to know who this man was. I asked Kellie ( I actually demanded it) to go back to the post office to find out who this man was but, the signature on the customs sheet could not be read. So I assume he was an angel.

Waiting......

Yesterday I left work twice. Once to go home and put Scott into bed because he wasn't feeling well and again to take him for a CT scan. I am going to the hospital today to pick up the CT scan that was taken on Thanksgiving day and over nighting both to Dr. Nick. I don't know where I have found the strength to actually pick Scott up. I had a anxiety attack last night but, manage to keep it away from Scott and under control. We here today if Scott will be admitted to Sea Pines ( I don't know why he wouldn't) I packed his bag last night just in case they come to get him. I feel bad for Milo that he will be in his cage for so long during the day. Keri offered to take our pictures for our Christmas card but, I have to play that by ear also. I hate the fact of sending out regular Christmas cards.

Thanksgiving Gave Me One More Thing To Be Thankful For

Kellie flew in as a surprise visit for Thanksgiving to help make Thanksgiving better while Blake is away in Iraq. It started off pretty good. We went to see Dr. Nick Tuesday and Scott's CT scan is unchanged there is still the 13 mm shift and swelling. Dr. Nick feels that if we have 4 consecutive treatments of chemo we should see a difference - if not we will need to change cocktails or add a cocktail to the Carboplatin.

We then met the family at The Cheesecake Factory for dinner and then home for some sleep. I worked on Wednesday and Kellie accompanied Scott to Physical Therapy. I then came home and began prep. work for Thanksgiving. I ran to Melbourne to pick up Skylar and back home. I couldn't reach Scott by phone so I had Kellie to walk in first because I had Skylar. She opened the door to tell me he was on the floor. I asked Kellie to keep Skylar busy outside and ran in to check on Scott. He didn't know how he had gotten on the floor or how long he had been there. From all the calls I made home I would guess 45 min. Kellie and I stood Scott up and helped him to bed.

Scott awoke on Thanksgiving to find he couldn't walk. Eventually we phoned 911 to transport Scott because he was con fussed, irritated, fatigued etc. Tom come to pick up Skylar and Kellie and I headed to the hospital , we spent a few hours there and they decided to admit Scott. Kellie and I headed home put plates in the microwave and went to bed. The next morning we headed back to the hospital - I picked up a really large beautiful Santa to take up to Scott's room. I think Scott thought he was going to be there for Christmas and I was starting to decorate his room. When Dr. Lorenta walked in he wanted to keep Scott for a few days but. Scott wanted to go home - so he discharged him.

Friday, Saturday & Sunday were really tough. I took Kellie to the airport at 4:30 am and went back home sent up everything I thought Scott would need for the day. I also have my phone on vibrate, if he needs me. Scott is going to call Sea Pines to see if they can come to the house.

Kellie was such a "BIG" help while she was here. She cleaned, she did laundry etc.. I felt like I was on vacation.

All Is Calm

Scott and I had a good weekend. I had to get a photo ornament in the mail of Scott and I for the family tree that is being sent to the soldiers in Iraq. I got to the Post Office 10 minutes before it closed. Saturday Scott and I went to see The Blind Side. Excellent movie.

Sunday I slept in until 8:00 which is pretty late for me. I then started laundry, went shopping, then to the grocery store. When I got home I made Zuppa Toscana for Scott. Cleaned a little bit more and called it a night. For some reason I was exhausted this weekend. I was hoping to get so much more done than what I did.

Scott and I have to be in Orlando tomorrow afternoon for an appt. (I am assuming) after the events of Wednesday evening. I have all the kids Christmas gifts so I am hoping to meet up with my mom so I can pass them off.

Scott and I plan on spending a nice quiet Thanksgiving at home (hopefully with Skylar) and I plan on making my famous Sweet Potato Bake for a few friends and a few pumpkin pies.

Scott's Home

CT scan came back with no swelling and no bleed. Scott's Dilatin level was 23.5 and normally ranges 13-18. We are not sure what caused him to be unbalanced or loss of vision in the right eye.
I am going to do some research this weekend with Dilatin being toxic in your system. Scott got out about 6:00 pm and we were both emotionally and physically exhausted. Probably a little more emotionally - with all Scott was saying, I really thought I was losing him. He apologized for ruining my birthday and I told him I have been given the best Birthday present anyone could ask for.

Observation

Scott, Tom and I took Skylar to the Circus yesterday. During intermission I noticed a change in Scott and asked him if he thought we should leave. We stayed until the final act and Scott began to have trouble. Scott was having a hard time walking, he seem to be fading. Tom helped me get him to the truck. Scott vision in his right eye was really blurry. He was telling me he felt pressure in his head like before and everything I didn't want to hear, he was telling me. I texted Michelle to tell her we were on our way to Holmes and I didn't know what was going on. I also texted Aaron,Scott's brother but couldn't get a hold of him right away but, did talk to him later that evening. I felt helpless because no one knows Scott like Aaron and he is my life line to Scott. Michelle made it to the hospital and I was glad to see her because she is my comfort. I was given a God send at the hospital when I ran into a nurse I know there. I was a mess and she asked me what was wrong, I asked if a certain Dr. was working and he was. Although, the waiting room was packed Scott was gotten back right away. I was glad because Scott had had chemo last week, no flu ahot this season and I didn't want him to catch anything. We are waiting for results of the CT scan.

WARNING BRAIN DUMP

Scott and I have had a tough year. Our lives changed on April the 23rd. We haven't had time to look back. It has been medically, emotionally and physically draining. We continue to receive prayers and are thankful for them. Although during this difficult year we have found out who are true friends are, the ones that listen when we need to vent and the ones that continue to do small things that make a big difference. We have learned that family expects and friends understand. We have seen the ones who continue to love us when we are not so loveable. The ones that continue to invite us to functions - even though we are unable to make 3/4 of them. I am still in therapy for the fall that Scott took in April. Every load noise makes my heart drop. Is it helping??? I don't know Scott fell last night and the thunk from the hall I heard in the living room made my heart race. I am still on anxiety meds. Scott is as uneasy as I am and he is going to schedule a CT scan today. I have learned not to trust the scans because although it shows stability, anything can happen and the domino effect that happened in April could easily happen again. We try to maintain our daily lives and not let this disease control it. When Scott and I married we vowed to renew our vows every 5 years. May will be 10 years and we have decided to fly to Hawaii to renew our vows. When I was looking at pictures I found the most beautiful breath taking spot. When I researched to find the name of the location it was perfect. The location is Heaven's Point. Scott and I take one day at a time and enjoy each day we have been gifted. If Scott is not feeling well we lay in bed together and watch our favorite shows. The days he is feeling well - we make the best of them.

We make sure we have time for Skylar, push that extra step, no matter how exhausted we are to make sure we give her childhood memories that will stay with her forever - while some choose to watch her grow up in pictures. Skylar is the best medicine you can ask for. We took her to coldstone Saturday evening. Scott and Skylar took their Ice Cream to the table and sat down and began eating. As I was standing at the cash register I looked over at them chatting and eating their ice cream - I didn't want to walk over to sit with them, I wanted to enjoy the picture that my mind had captured and one that I hope will stay with me forever.

It has been difficult knowing Blake is in Iraq. With all we have going on in our lives I try to keep the comfort of home in packages that I ship to him. It is tough seeing how exhausted he is through webcam. A few weeks ago we were on webcam and I asked him to say something so I could hear his voice but, he couldn't because there were people around. I asked him to just cough, something so I could hear and he began to whistle. That whistle (that would normally drive me crazy) was music to my ears. I don't watch the news anymore - the war and the politics drive me nuts. Every soldier that is lost breaks my heart. Scott and I decided this year that we will not buy for the adults but, will send Christmas Stockings to Soldiers in Iraq. We are going to call them "Operation Scotty Soldier Sacks"

I do have to say, as I have said many times before I am thankful for my live. I am thankful for the people God has put in our lives. I wouldn't change one thing because I feel Scott and I enjoy the things people take for granted because of all we face.

Long Weekend

Scott began chemo again on Thursday. I thought he would have a rough time because he has been on chemo vacation for awhile. Surprisingly he did really well. He did have an odd case of the hicups that lasted 9 hours Thursday night and on Saturday night for 9 hours. Thursday evening I gave him peanut butter and that seem to help but, Saturday evening it didn't do anything. Skylar had a sleep over. Scott had the hicups, he was aggitated because had been laying awake for hours. When he would hicup he said Skylar would hit him and say he was keeping her awake. I had wised up and went in the other rooom. Poor Skylar woke up throwing up. I was playing nurse to her and Scott. Tom picked Skylar up and Scott eventually got up and felt pretty good. I am now trying to get laundry done. I need to go to work to get some rest.

Hate Being The One To Make Health Desicions

Scott had a rough Saturday afternoon and Sunday. He didn't feel good, he seems to be leaning to the left really bad, his walking wasn't so great and he slept allot. He usually calls me as soon as he wakes up but, I didn't hear from him so I decided to give him a call around 10:00 to see how he was doing. He said he felt about the same. He did end up at physical therapy but, with a phone call to me about 3:00 that they didn't want him to drive home. My heart dropped and I headed to Sea Pines to pick him up. When I got there Judy was sitting with him and I asked Scott if we should stop and have some bloodwork done to rule out if he was toxic to Dilatin. We should get those results today. I was explaining to Scott how I hate being the one to decided someone else's fate. If it were me I would know what to do but, when someone else's health is in your hands you want to make the right decision. I realize we can't panic over every little thing but, I do and try not to show it. I was scared to go to sleep for the fear he would fall in the middle of the night and he did. I checked him out and he seem to be ok. When I asked him how he felt this morning he said better.

More Fun With Skylar

Scott and I took Skylar to Satellite Beach Founders Day. Every year Satellite Beach celebrates the city's birthday. Joe (our UPS guy) has an Alpaca Farm and he was going to have two of his babies there. hey also have a huge craft/bake sale. this year allot of the local restaurants had tents and Skylar was excited to see the parade. The Alpacas were amazing. One of the Alpacas was humming and when I asked what it was doing, they explained when thy get stressed they hum. Laughing I said that is what I am going to do . Later in the day Scott asked me what was wrong (for the record I wasn't humming) and Skylar said remember you told that guy you are going to do what the animals do and then I remembered the humming story. Skylar picked out a horse made out of Alpaca wool. It is the softest soft you will ever feel. The alpacas were so friendly and we are looking forward to going down to their farm in a few weeks for their Christmas with the Alpacas.

The parade seem to be a big hit with Skylar. It seem to be along wait but we were at the end of the parade. I had worn my Mom of a American Soldier shirt and had allot of Thank yous and well wishes to send to Blake. We brought Skylar back here and let her play Wii before taking her home. She maybe more competitive then me and she is really good at the games. Michelle and I had a baby sower at 7:00 pm so by the time I got home when on Facebook to check my Farm it was about 12:00, which would have been 7:00 am in Iraq and I was lucky enough to find Blake online who had just gotten off work : ( Blake called us this morning, he seems to be in good spirits, the days are long and they work 7 days a week. He sounds really tired. I sent out another package packed with Gatorade/Lemonade packets for his water and he requesting cherry Kool-aid packs today. So that will be in my next package.

Our next week gets a little more complicated. Prayers for Scott as he starts chemo again on November 12. I think we will plan on a quite Thanksgiving home this year - if we get lucky we will have Skylar. I am trying to think of something creative to send to Blake for Thanksgiving , so if you have any ideas I am all ears.

Adventures With Skylar

Scott and I decided to take Skylar to the park. They had a new climbing wall and we thought the little monkey would love it. Skylar wasn't feeling well so we made it a short trip. Scott used to take Skylar to this playground when she was little, so we were glad to see they made it more older child friendly. It's almost like the playground grew with Skylar. Skylar is getting so big, too fast. We then went home and tried to get her to stay calm and relax so she could go Trick or Treating that night. Skylar again did great. She is such a pleasant child to be around.

Skylar was super excited about Trick or Treating. As soon as I got her out of the bath and dressed in her costume - she was ready to head out. Tom showed up and after a few pictures , she was ready to go. Scott did great on his walking. We got about half way around and Tom came back to get Scott's truck. Skylar was happy because she was tired and wanted to ride in pappy's truck home. When she would ring the door bell she never said trick or treat she would say Happy Halloween. Skylar made an adorable Dorothy and everyone thought it was cute that Toto was in her candy basket. These were a few of my favorite pictures. As you can see Skylar loves her daddy.

Weekend Fun

Scott and I had a wonderful day. We decided early in the week to catch a movie. We wanted to catch an early movie because we are still dog sitting. We decided on Step Father, what a good movie in a creepy way. After the movie we went to Pano Vino I had spaghetti and Scott had a chicken dish that Dr. Cwikla had introduced him to. After lunch we made our way to Sports Authority to pick up a dart board for Blake's care package and then to Ross for a sheet set, a blanket and a comfortable pillow also to go in his care package. The pillow that the Army gives them was small and flat. He will find both fun and comfort in his first package from home. I was also able to order a case if the small boxes of laundry soap that you can buy in the laundry mats. Hopefully I will have enough room to pack some of those also.
He was able to access the Internet to talk with Kellie and post one picture. In the picture it is just him, sand and allot of complaints about the conditions over there. Hopefully, things will be better in Iraq.

October Happenings

Scott had ulna nerve surgery on his hand in early October. The surgery was a success - the nerve that was permanently turned on when the nerve block was done is now off. Scott also received his new AFO and it has improved his walking skills greatly. After a small break so his hand could heal Scott will resume chemo next month. Dr. Nick wants to hold the Interferon , thinking that - that is what was causing Scott's hives.

I took a quick trip to New York to see Blake and Kellie. I was there to see Blake off to Iraq. I enjoyed the 30 degree weather and it was nice to finally see where Blake has been laying his head at night. The trip was quick and we spent our time making sure he had everything he needed for deployment. We did take time to do a little sight seeing and making sure Blake ate everything he wanted to eat. As I was standing there talking to our soldiers it made me realize how they are just kids.

A big Thank You to Michelle because I ended up dumping Skylar's party in her lap. We had Skylar's party on Saturday. The kids had a really good time and seem to enjoy the simple food choices that we had made. I can't believe Skylar is 6 years old. She is growing so fast.

I heard from Blake on Sunday. He is in Kuwait and will be making the move to Iraq soon. My care package is ready to be packed and shipped out on Saturday. I have done so much research on what to send, what not to send, how big the box should be , how often to send them etc... I think I am prepared. I have decided to go with the smaller boxes and send them more often. Blake sounded tired, he said it is 130 degrees and the air is so bad you can hardly breathe. Blake also said all you can see for miles and miles is sand and old tires on the side of the road. I was surprised to find out that they have a Subway where they are.

I had an Epidural on Monday for the pain in my neck, head and arms. It gave me instant relief. I opted not to be sedated because I hate the after effects. I was able to walk out afterwards and I laid flat when I got home. I have had good results from it and have a 30 day window for 2 more injections if I need them.

Scott and I are house/dog sitting for a few days. Maybe I'll find time to get a few things done at home also.

Cake In A Jar

I was looking for a way to send baked goods to Blake and they stay fresh. I found this - how clever.

A really neat way to send a cake and it stays fresh!! They love this!!!!!!!!!

Cake in a Jar

Get wide-mouth canning jars (pint size). You can find them at Walmart, other stores, or online.

Boil the jars to sterilize.

1 (18.25 oz.) package cake mix (you can use ANY cake recipe instead of packaged)

8 jars with lids and rings

1. Make the cake according to the package instructions or recipe

2. Grease the jar. Put 1 cup of batter in each jar and keep the rims of the jar clean. (I fill mine up 1/2 way–try one first before you make all of them so you know how far to fill)

3. Place jars on cookie sheet on rack on the oven (to prevent them from tipping over). Bake for 30-35 minutes or until toothpick comes clean

4. While baking, boil jar lids in a pan of water ( I do rings too, but I’m anal)

5. When cake is done, take one jar out at a time and cover with hot lid. Screw on jar ring tightening it slightly.

6. The lid will seal as it cools. Listen to hear them “ping” as they seal. But if they don’t, wait until completely cool and then press on the top of the lid. If it doesn’t move at all, it’s sealed.

7. As the cake cools, it will pull away from the jar slightly. That’s ok. It just means that it will slide out of the jar easily.

8. Unsealed jars should be stored in fridge and eaten within 2 weeks. Sealed jars can also be stored in freezer; however, they should last sealed and unrefrigerated for quite a long time.

9. DO NOT FROST cake in the jar! Send frosting along.

10. Make sure you wrap the jars well (bubble wrap’s preferable, but wadded newspaper or clothing and other items will pad it too).

I’d suggest that you do a trial run of cake in a jars before you decide you’re going to send them. Try ONE jar in the oven before you fill the rest. If you don’t do this, you won’t know how far to fill them and could end up underfilling or overfilling them. If they’re slightly overfilled, mash the lid on top and screw the ring down. It’ll seal and be just fine!

Don’t forget a plastic knife (or two) for the frosting and some plastic forks.

You might want to send instructions on how to get them out–unseal, tap gently, pour out. Or the guys can eat them right out of the jar.

New York and Deployment

I flew to New York early Saturday morning to see Blake off to Iraq. The two days I was there we ran around trying to get him prepared, last minute shopping and packing. I was so surprised at all the things they have to pack to carry with them. I couldn't even lift his bag. Gas masks, helmets, bullet prove vest etc..you would think they would issue them when they got to Kuwait. They will stay in Kuwait for extra training and then to Iraq. The base gave out soldier hug me dolls. The doll is dressed as a soldiers and you place their picture in a plastic sleeve on the face. Kids were holding on to their dads crying. A unit was singing "Lean On Me" it was all very touching. After Blake left, Kellie and I went back to their place, packed Kellie's car full of her clothes, picked up Reggie (dog) and then decided to go to a hotel in Syracuse. That put us right by the airport and Kellie 2 hours closer to home. We had to sneak Reggie in through a side door at the hotel. Reggie did one bark and the front desk called our room. Of course "I lied" i was so shocked that someone would complain, it wasn't even a large bark.

Blake arrived in Kuwait at 9:00 am on Tuesday, so he arrived safe. We were assured from the commander will bring our soldiers home safe. Our soldiers will be back up for the Iraq soldiers. He said, where they are they are safe.

Human Cloning

I am picking Skylar up today from school to take pictures of her for her birthday party. I find out Thursday, if I need to fly to New York on Saturday and return on Tuesday. Skylar's birthday is Wednesday , the 14th so I need to prepare cupcakes for her class. Skylar's birthday party is the 17th and Scott's 16th year surviving cancer anniversary is on Sunday.
My brain is in freeze mode and this is diffidently not the time for it. I am wondering if I should be cloned. My clone may end up like the 3rd one in the movie " Multiplicity" : )

September, Sleepover & Smores

Scott had chemo on Thursday and wasn't feeling to well. I picked Skylar up from school on Friday.
I decided to do something different with her so I showed her how to make S mores. She had more fun burning the marshmallow than eating them. I had also purchased foam pumpkins, Disney Princess stencils and candle lights for us to carve pumpkins.
Saturday morning I was watching Blake's DVD we made for his party. When we finished Skylar pointed to her eyes, tears streaming down her face I asked her what was wrong. She said she missed her Uncle Blake and she doesn't understand why he has to be away. Try explaining to a 5 year old, war and American Freedom. After I settled her down she asked me Please don't play that again.
Michelle brought Turner and Boston over to play with Milo. I had gotten out the stencils and the pumpkins and I asked Skylar what she wanted to crave, she said an American Flag for Uncle Blake. We settled on a princess shoe and Cinderella's coach. The best thing is she can keep these pumpkins and turn the candle on and off by herself and they are totally safe.

Back To The ER

Scott woke up Monday with a excruciating headache. The last time I saw him in that much pain was when his brain swelled and they had to do brain surgery. I suggested we get him dressed and get him to the hospital. When Scott got to the truck he didn't have the strength to pull himself up in the truck , so I picked him up. I pulled something in my lower back and can hardly move. By the time Scott and I arrived to the hospital , he was vomiting. They put him in a room where they administered Phenergan and Dilaudid and Scott slept like sleeping beauty. It was so nice to see him so peaceful after so much pain. They repeated the CT and there is still no change. This is something we will need to address with Dr. Nick because the swelling being unchanged is not good.

Back to Reality

Blake was hoe for 2 weeks before heading to Iraq. the last week he was here we took a cruise to the Cayman Islands and Cozumel. In the Caymans fishermen for years have cleaned fish and threw there scraps over board and because the water is to shallow for their predators the sharks the sting rays started to accumulate there. The locals named the place sting ray island. The sting rays became very accustomed to people. They would swim right up to you and nudge you so you would pet them. They would even come up and lay in your arms. The females were about 3 feet plus wide , the males much smaller. It was amazing how soft they were underneath. Iguanas had invaded the islands, they were everywhere. They laid everywhere by peoples pools, on their docks and in there trees. I was sea sick from the little tender boats but Blake wanted to go to Margaritaville so I sucked it up and went. I drank a coke and when we got back to the boat I had to go to bed. Poor Scott he was had hives so bad he stayed in bed most of the trip but, would occasionally we would go get something to eat. If he didn't feel like it I would bring food back to the room for him.

Cozumel was my favorite. I was amazed at the heat. In both the Caymans and in Cozumel. In Cozumel Blake and I rode horses thought the Mexican ruins and back to their Cantina for beer. We then took a cab to Carlos and Charlies, one of the most popular places in Cozumel. The drinking age was 18 and Blake took full advantage of that. I learned really fast to ask the cab drivers if they had change. One of the island guys came up to Blake and asked him if he was from Texas. I guess the black cowboy hat, belt and boots were alittle intimidating for them. it was great because they really didn't drive us to crazy to but their Island trinkets.

Friday was Blake's going away party. I made little army soldiers with berets and was able to find combat boots on line to finish them off. I had deployment candles for adults and bears for the kids. Each party favor had dog tags around it saying " Our father please be with Blake as he leaves to serve our nation, for he is a hero of American freedom. It was bitter sweet and we took him to the airport at 6:00 am

He's Home

Blake 's flight left New York @ 5:45 am .After a long delay in the Atlanta airport and a delay on the tarmac once he landed due to lighting Blake finally made it home at 3:30. Our first stop was MeeMaw's Barbacue where Brandi met up with us. He spent about an hour at home and he was off and running. He pops in and out throughout the day, how I miss having kids home. I am trying to catch him long enough to see if he wants me to make a special dinner. I spent Saturday shopping for things for Blake. I spent Sunday making centerpieces for Blake's going away party. Blake also presented Scott and I with a Military cross that he will be wearing while in Iraq. I am not going to take mine off until Blake returns home. Thank You Blake.

Measurement Wrong

I was dreading our appointment with Dr. T. He is the best surgeon but he is also cut and dry. I thought at first I would wait in the waiting room but, then I thought how unfair for Scott to get the news by himself. I decided to take a deep breath and be there for Scott. I did ask Dr. T. to go easy on me. When he pulled up the past scans and compared them with the recent one he found the mistake. The radiologist had measured higher than the last.
The ventricle that he measured is larger at the top and he measured it in the larger part making it look like there was swelling. The right part of Scott's brain is a darker gray then the left. When I asked what it was he said tumor, edema & scar tissue. That was hard to look because there was a huge area. Thank you for all who said a little prayer

Say A Little Prayer

Scott had a CT scan today and the brain is beginning to swell. We are at 2 mm but were at 3 when the domino effect started last time. I called Dr. T. the surgeon and he is going to see us at 9:30 am tomorrow. Dr. Nick is out of town, so my confidence is none. I am a nervous wreck and I am sure Scott is to. I'll know more after our appt. Please say a prayer for us.

Accident

Two - Three o"clock in the morning seems to be Scott's time. This morning at 2:22 I heard Scott fall. I jumped out of bed to see what happened and there was blood everywhere. He had busted open the back of his head. He had a gash about 1 1/2" long. I cleaned up the blood on the floor, his head , his hands were covered in blood and I wiped them off so I could access where the blood was coming from. I looked at the gash to see if it needed stitches. It looked like it was close - so I put 3 band aides on it and put him back in bed. When I helped him up his whole side was red from the impact. I asked him how he felt when I was leaving for work and he said he felt like he had been hit in the head with a baseball bat.

Count Low

Scott got to Orlando for his injection for Interferon and apparently they faxed over the wrong results. They faxed over the previous weeks results. This week was not great the white blood cell court was 2.2. I am waiting to hear from Scott to see if he gets the Interferon.

Numbers Don't Lie

Two weeks in a row Scott's white blood cell count has been perfect. Scott and I were wondering if it is the Reliv. We are waiting to see if after chemo. his blood test are perfect or at least close to perfect. If they are then we know it is the Reliv. Scott and I both seem to have more energy on the Reliv and it doesn't taste bad at all.

Pool Fun

Skylar talked my mom into bringing Kylee over for the weekend and as a bonus she brought Reese also. We swam in the pool from 8 am to 5 pm. All the little girls eyes were so red. We let them take an outdoor shower, washed their hair and had put on their jammies. The other girls brought stuffed animals and Skylar asked me where hers was I told her she had taken all her animals home. She found the teddy bear my dad had given me when I was 9 years old and in the hospital. Before telling her she could sleep with it I wanted to make sure she knew how special the bear was to me. Skylar laid down on the bed at 7:00 barely got the bed under her sweet little face before she was out like a light. Mom wasn't so lucky with her girls.

We had fun with the underwater camera. We woke up Sunday morning and Resse , Kylee and I were so burned. We successfully got all the girls dressed and made it to church 25 minutes early.

After church I thought the girls were to burned to get in the pool back in the sun so I told them I would take them to buy them beads so they could make crafts. When we got home and I opened all their beads and they had talked my mom into letting them back in the pool. They were so exhausted the became crabby, they began tattling, and then started crying.

Skylar had school today so we thought it would be a good idea for her to come home and get some much needed rest. All the girls seemed to have a great time. We can't wait to do it again.

Good Things

Scott and I have been trying the Reliv to see how it works. It is basically all naturals products that your body needs and doesn't receive. We both have noticed a big difference. The main difference is our energy levels. Scott's blood levels this week was picture perfect. Does the Reliv have anything to do with it or is it because he hasn't had the Interferon in a week? Next few weeks will help us decide. He received his Interferon yesterday and did really well. Last night he was feeling a little tired and broke out in hives, yuck! So I had put clean sheets on the bed ( I love that feeling) and gave him 2 Benadryl " sweet dreams"

I was given a very generous blessing last evening so I felt like I needed to bless someones life. I in turned bestowed a blessing upon someone that I felt needed it.

Great Weekend

Saturday I took Milo to the dog park and then came home to work in the yard. I only got a few hours of good yard work in before it got really hot. Michelle and I had gotten gift cards for Djon's Chop House in Melbourne Beach. On Saturday Scott, Michelle, Matt and I decided to try it out. It was OK, it was pricey and the food was not worth it. We all felt the same, we wouldn't try it again.

Sunday Scott and I went to church, had Skylar over for a swim and had a quick visit with some friends that had stopped by. I cleaned rearranged the living room and did laundry. It was pretty quite in the Zech house this weekend.

Great Minds Think Alike

We drove to Orlando this morning for Scott's Interferon. His CBC was 2.1 so Dr. Nick decided to hold the Interferon. I was thinking on my way downstairs, this is crazy. We drive to Orlando once a week and this is the 2 nd time this has happened, there has to be another way. Scott met me downstairs and said Mike who is an RN there thought us driving up, not knowing if Scott will be able to get his Interferon is crazy. So Mike was on his way down to talk to Donna (Dr. Nick's nurse) to see if we can have it set up on the coast. If it works out the way we are all planning, Scott will have his blood drawn on Tuesday here on the coast and if everything is in range then we will drive to Orlando on Thursday.

So Many Things

Friday and Saturday Scott spent the day in bed. He was sick from chemo and covered in hives. So I was treating both symptoms and unfortunately both the meds. I was giving him make him sleep, so at least he was able to get some rest.

Sunday Skylar came over at 7:00 am so I decided to take her to church. Scott got up shaved his head, laid back down for a few minutes, got up again shaved his face then laid back down. I tried to convince him to stay home but, he wanted to walk into church as a family. When we got to church people flock around us, one lady cried, someone we didn't even know approached us and said their group had been praying for us. When the prayer was said Scott's name was mentioned. It was so heart whelming to be surrounded by so much love. That was the first time we had taken Skylar to church and she loved it. So I am thinking she should start spending Saturday nights with us. After church we took Skylar to a movie and the to Ben and Jerry's for ice cream. I showed her how to hula hoop (yes in Ben & Jerry's) and she picked it up really fast. They took her picture to add to their wall so we will have to go back to check it out.

I booked our cruise for September when Blake and Kellie come. I am trying to look at this as a positive experience for Blake. Blake has already taken an adult stance on what to do with all the extra money he will make while being deployed. He wants all his loans paid off and money put back for a down payment on a house. Maybe this will be an adventure for him. Our church sends care packages to our military and I want to be involved with that.

Update

Wednesday Scott had called my cell phone while I was getting my hair done. He asked me how much longer I was going to be and if I wanted to go swimming? I said I was getting my hair done and I didn't want to get it wet. Why, was Scott asking me this? Because "Scuba Scott" who is not suppose to be out by the pool when nobody is home was outside taking pictures for Brice his physical therapist and fell in the pool. NOT FUNNY!! I told him he could make a decision 1. He could not stay out of the backyard when I am not home or 2. He could go to play B-I-N-G-O with the old people. Although we love to play bingo he choose #1.

Thursday we had to be in Orlando at 7:30 am for Scott's blood work. Yeah!!! All the white cell count was within range. Dr. Nick decided to go ahead with the Carboplatin and the Interferon. Poor Scott he is so sick this morning. I hung around a little bit before I went to work. I gave him Phenergan, ice tea and a bucket. I can't tell you how it breaks my heart to watch him go through chemo. Skylar wants so bad for me to pick her up at school so yesterday I made plans to pick her up since Aaron is coming up to see Scott. Maybe I'll take her for ice cream I don't want to take her back to the house because I don't want her to see Scott sick.

A "BIG" thanks to all of you who signed Scott's dedication page.

Does Any One Ever

make a list of all the things you need to get done in a weekend and finish it? Scott and I just had our garage redone so everything the garage held was in a POD. I unload the POD but, looked at my new storage space and realized I needed to go through and get rid of some stuff. I sent Blake's footlocker that helds things from his childhood and childhood Christmas ornaments. I also made 2 totes for Brandi. I then had enough storage area for my our things. I organized the whole garage.
I wanted to get yard work done but, didn't make it that far because on Sunday I was exhausted. I did manage to cut 2x4's and place them under our bed. I hate those metal supports that the manufactures use and they are impossible for wood floors.
I also wanted to get my house cleaned but, I will work on that during the week. I'll make a new list and see how I do.
Scott seems to be enjoying his time off from injections. We didn't even Wii this weekend so I guess I am not addicted.

If You Have Not Already, Please Do So

I just dedicated a page to Scott Zech at LIVESTRONG Action.

This page is a part of the world's largest dedication book that LIVESTRONG
Action will use to pressure world leaders to do more to fight cancer. Can
you add your name to my dedication page? It'll only take a second, and you
can help me reach my target of 25 dedications.

Please click here, it only takes a second:

http://www.livestrongaction.org/node/42825 [1]

Right now, Lance Armstrong is dedicating his ride in the Tour de France to
the fight against cancer. And after the race, he'll send this dedication
book - with your signature - to world leaders and pressure them to make
cancer a priority in their own countries. It's our best chance to push for
better treatment, more funding for cancer research and access to care for
everyone around the world.

But if people like us don't stand up, these leaders won't pay attention.

Will you check out my dedication page? Scott Zech inspired me to
take action - hopefully they'll inspire you to do the same:

http://www.livestrongaction.org/node/42825 [2]

Can You Hear Me Now?

Scott saw Dr. St. Mary this morning. Dr. St. Mary doesn't think that physical therapy is helping Scott. The problem is his brain is not signaling his leg/foot to work. Scott has to be patient and let the brain heal as it heals it will send signals. He has ordered Scott to have a new AFO fitted for his foot. This should help correct his walking. Scott will see East Coast on Monday. Browning's had told us last Saturday that they can also line the AFO with mole skin to make it more comfortable on the patient. Dr. St. Mary thinks the occupational therapy for Scott's hand is good. He also believes that the hives are coming from the frustration Scott is beginning to feel. Maybe know he will kick back relax alittle bit, let things heal as slow as they are going to heal and practice Wii so he will be alittle competition for me : )

Rest For Scott

Scott was unable to get chemo because his CBC and ABS had dropped. Last week they looked like they were reproducing but, the blood test today showed they had dropped. Dr. Nick thought it would be best to do nothing and let his body rest for a week. We will check his levels next week and go from there. I think Scott was relieved that his body is able to rest for a week. I wasn't sure at first but, Dr. Nick assured me it would be fine.

Michelle brought Scott over homemade Macaroni and Cheese and turtle and chocolate chip cookies @ 5:30 am (that's love) It was so cute she divided the mac & cheese in individual containers so all Scott would have to do is pop it in the microwave to warm it up. She may have made a mistake - I see allot of homemade mac&cheese in her future.

Scott has an appointment this morning with Dr. St. Mary to see about the left foot and possibly his left hand.

Publish Post

Doing Better

Scott had done pretty well this week. He has had a hard time dealing with the Hives. At night it seems to get worse. He has been taken the Children's chewable Benedryl because they are not as strong as the adults. I think we will start trying a chewable in the morning and one in the evening. He has physical therapy and occupational therapy today. The block they did last week to straighten his hand didn't work like Scott hoped it would.

Scott has chemo tomorrow (if his CBC count is up) and he will get another shot of the Interferon. Friday we have an appointment with Dr. St. Mary to see if there is something he could do to improve Scott's walking. That seems to be the thing that is starting to really affect his spirits. It breaks my heart to see Scott have to go through so much.

Wii Are Addicted

Who would have thought the Wii would be so much fun. Scott and I have different games bit, are enjoying the games that came with it. Scott loves the baseball and I love the tennis. Probably because those are the ones we are really good at. I've found two things It is good balance for Scott and is great exercise for me. Scott and I are so competitive against each other. If one or the other wins we hit play again. I played Wii from 3:30 to 7:00 last night. I have so much to do and have no time for Wii but, I find it hard to put it down. So tonight when I go home and am not even turning it on.

What A Weekend

Scott did pretty good Thursday and Friday. Aaron came up from Jupiter and he and Scott went to lunch. Scott had gotten a Wii for his birthday and hasn't played it yet so Aaron introduced Scott to the Wii. Scott and I even played a few games after Aaron left.

Saturday Scott woke up with hives. I gave him a children's chewable Benadryl because that usally takes care of it. We got went to Browning's to see if they had something better for his foot so it wasn't so painful for him to walk. They tried a couple different things but, didn't want to hender his ability to walk or his rehab. I had a few things to get at Sam's . Scott didn't really feel like going in. I offered to take him home and then run to Sam's but, he said no he would sit in the car. So I did a quick run in and out. It usually takes Scott a little longer to get out of my jeep - while he was getting out I was taken things out of my truck to the front door. By the time I am done Scott is at the door and I unlock it and let him in. We have been doing this for awhile- only this time Scott got out of the jeep and fell. I tried sitting him up he had no balance. This lady was jogging by with her kids and offered to help but I was afraid to pick him up right away for fear he would fall again. I told her no I had it, poor lady kept insisting to help. I finally told her I couldn't pick him up because he has no balance. We (Scott & I ) almost had him up but, nothing he fell again - not as far this time. He asked me to roll him on his belly and he then brought himself to his knees and stood up. He was still off balance so I walked him into the house and he fell asleep on the couch. I don't know if it was the Interferon or the Benedryl. I heard a noise and ran to the bedroom, I was so scared I thought Scott had fallen again. When I got to the bedroom he had dropped his glass of juice. He kept saying he was sorry but, I was so glad it was his juice and not him. Every noise I her, every dropping sound takes me back to April 24th when Scott collapsed on the bedroom floor. I keep thinking that memory will fade but, it becomes more vivid each incident Scott has. I checked him before I got into the bed and he still had a few hives and I told him he should take another Benedryl but, he said he was still feeling the effects from the one he took earlier and didn't want to take anymore.

Sunday Scott woke up and was covered in Hives. I gave him Benedryl - lots of Benedryl so he was pretty dopey all day. He slept most of the day with small bouts of me waking him up to give him something to eat. I stayed beside him most of the day and then I went outside to unload the POD. I started putting things away and then realized I need to go through everything. I didn't realize how much Christmas stuff I had. I am going to make a box for Brandi and one for Blake and hopefully get rid of most of it that way.

Monday I woke up this morning made Scott a Spinach and cheese omelet , put his morning meds beside the bed and realized he didn't take his night meds. woke him up at 4:00 am to see what he wanted to do about his nightly meds. I asked him about his Hives and he said they were gone. I asked him how he felt and he said he feels like he has a cold. UGH!! I told him to call off rehab today because he didn't need to be around people for his sake and theirs. I put his wheelchair beside the bed and made him promise me to use it today. I gave him his cell phone to call me if he needed me home. I am a nervous wreck being away from him. I will probably drive him nuts with phone calls today.

One Day At A Time

I feel like I am in the twelve step program and at a stall. Before heading to Orlando yesterday I went to Holmes Regional to pick up the CT scan and report from June 26. Scott was unable to get his Carboplatin yesterday but he did receive his injection of Interferon. His overall white blood cell count was 1200 and it needs to be at least 1500. We had a consultation with Dr. Nick where he said not to worry, we will push it back a week. Dr. Nick would rather hit him with a heavy dose of Carboplatin and let his cells recuperate then lower the dosage. Dr. Nick also said there were small flecks of hemorrhage in the brain but, not to worry about that either. HOW DO YOU NOT WORRY? A combination of all these things are what started the brain swelling in the beginning. Dr. Nick did give Scott samples of Nuvigil to help with his energy level. Scott's physical and occupational therapy is going slower than he would like.

Blake texted me asking if Scott and I wanted to go on a cruise in September when he and Kellie are home. Today I will be looking into cruises, he'll be home for a week. Blake dances around telling me he is deploying in October but, in my heart I know he is. It's odd how you just feel it. Scott and I are planning to go to New York to see him off the tarmac. I can't even try to imagine the next year and a half.

Fourth Of July Fun

Skylar, Scott and I headed to Orlando on Thursday for Scott's Interferon injection. Skylar asked what they were going to do so I explained Scott's injection. Skylar asked if sh had to watch them do that to Pappy, I said, "no baby" you don't. We walked back to the room with Scott and then Skylar and I found a quite room to wait. Scott kept texting me and telling me what was going on. After the injection we headed to Port Orleans French Quarter to check in. We unloaded, caught a bus to Disney, caught a monorail to the Grand Floridian and made it just in time for dinner with Cinderella, Prince Charming and Lady Tremaine oh yeah and the evil step sisters. Skylar didn't want Lady Tremaine and the evil step sisters to sign her book because they were mean to Cinderella. Cinderella told Skylar that her step mother and step sisters were trying very hard to be nice to her. Lady Tremaine told Skylar that if she was mean Cinderella, Cinderella would not have invited her, that this was a celebration. The evil step sisters never made it to the table before Skylar had had enough, she was ready to go back to the hotel.

Friday Skylar and I got up had breakfast and headed to Hollywood Studios. Skylar and I waited in line for 70 minutes for Toy Story Mania, what a fantastic ride. I was so surprised at how great Skylar was waiting in lines. She then wanted to go back to the hotel to swim. We headed back to the hotel. She barely got to swim and they asked everyone get out of the pool apparently a small child poohed in the pool. They had closed the pool for over an hour Skylar and I headed back to the room and she crashed.

Saturday we had plans to have breakfast with Alice in Wonderland, the Mad Hatter, Mary Poppins, Tigger and Pooh. Scott stayed behind. Skylar and I headed to the hotel restaurant to make sure Pappy was fed before we headed for breakfast. After breakfast we had plans to attend the Magic Kingdom. The look on Skylar's face and her giggles as she saw the characters was so very cute, the memories are priceless. The characters made their rounds from behind so I would tell Skylar who was coming up behind her. She would quickly take her napkin and wipe her mouth so she was presentable to the character. She wasn't sure about Tigger or Pooh but, warmed up quickly when Tigger kissed her and Pooh hugged her. As we were leaving , a lady chased Skylar down to give her pixie bracelets. Skylar is so grateful for everything someone gives her. After breakfast Skylar changed her mind she wanted to go back to the hotel to swim. I asked her if she was sure because the park was expected to reach maximum capacity for the fourth of July and if they closed we wouldn't be able to get in to see the fireworks. She still opted for the pool, she didn't care about the fireworks.
We went back to the hotel and changed into our swimsuits. I had 50 sunscreen, we grabbed towels and we were off to the pool. The hotel had a big Sea Serpent with King Triton riding on top. Skylar couldn't wait to slide down his tongue. It was so cute. She wanted me to play in the pool with her. We both had fun on the slide and in the pool. I kept seeing Skylar with different goggles on when I asked her whose goggles she was wearing ,it was like she was going around the pool asking different kids to wear their goggles. I then suggested we go to the gift shop to buy her goggles. I was watching Skylar on the slide, when I noticed she had taken charge on the slide and would tell the kids and adults when to slide and they were actually listening to her. I was watching with amazement when an adult looked at her to see if she should slide or not. I later asked Skylar what she was doing and she said she was the life guard. The pool wasn't really crowded I think because everyone was at the Magic Kingdom.The sun was hot, the browner Skylar got the redder I got. We swam for over 4 hours and then they closed the pool due to bad weather. We headed back to the room and ordered pizza. We had pizza and crashed. Needless to say no one seen fireworks and I don't think anyone cared.

Sunday was time to come home : ( back to the real world. Scott ended up getting some much needed rest. On the way home- Skylar wasn't ready to go home yet so she asked if she could come over to swim. She really didn't swim much because I couldn't swim with her , I was so burnt and Scott didn't want to get over heated.
I took two cameras with me . One I couldn't get the battery to charge and the other I just purchased, it came with one memory card that held 10 pictures. I didn't even think to try it out before hand orbuying a bigger memory card. When we were at the hotel I bought a throw away camera. When we got back to the coast I dropped the camera off at CVS. I wanted Skylar to see her pictures before she went home. I went back to CVS to pick up Skylar's pictures and she put them into her photo/signature book. She looked at the picture found the signature and put the picture with the signature. I then went to pick up Milo and deliver Skylar to her dad.

Ready For Vacation

After work I headed to purchase Skylar a full piece bathing suit. Who would have thought at 5 years old she would be so self conscious about her belly being seen. Scott thought it would be a good idea to purchase ponchos due to the predictions of the weather forecast. Just in case we get lucky and see a little sun I also bought sunscreen. I came home packed , showered Scott, then Skylar and then myself. Now we are all clean and ready for bed. I hope Skylar sleeps she is super excited for tomorrow. She loved all her new clothes, her bathing suit and her PJ's.
I am going to take Milo to daycare early so I can come home and pack the car and then we will be off to Orlando.

Pleading Insanity

I was cleaning and shredding paperwork yesterday when I came across Scott's MRI results from the hospital. Before I shredding the paper work I wanted to make sure it wasn't something we needed so I flipped through all the paperwork and began reading.

"BIG MISTAKE" HUGE MISTAKE - what the hell was I thinking. I told Scott that I had read it and his reaction was also what the hell were you thinking. He then told me he would never tell me what Dr. T (the neuro surgeon) told him. He said it was a closed door conversation. OH!! that made me feel better. I am an emotional wreck, I feel like I am walking in a fog. It's hard for me to work because I worry about Scott being alone. What if something happens and he can't get to a phone?? My mind is driving me crAzY. I said in the beginning I will not let chemo control our lives but, it's hard to not let this disease control my every thought. I feel like Demi Moore in the movie Ghost. I tell Scott all the time how much I love him, how important he is in my life but, I feel like I can't tell him or show him enough. Does he know how happy he makes me???

Neither of us know what tomorrow will bring but, each episode that Scott has scares me. I wonder if it is the tumor , chemo, the injection or changes in the brain from the surgery. I am scared each day to not tell him how important he is to me because what if there is no tomorrow. I had surprises that I had to spill because I am afraid to keep a surprise for the fact that I may not get that chance to "Surprise" him.

I am looking forward to getting away for a few days. Scott has his injection Thursday and Scott, Skylar and I are having dinner with Cinderella and the Princess's that evening. Scott favorite is Belle. I just hope he is feeling okay after the excitement the last injection caused.

Blake is suppose to go to Iraq in October , if his compassionate reassignment does not go through. I am really hoping it does because I honestly think I am at my breaking point.
I don't even what to utter the words "What Else" could possibly go wrong.

Black or White

When Blake was three years old I asked him what he wanted to be for Halloween and he said Michael Jackson. My first thought was how was I going to make a white boy look black? No matter how much I insisted Michael Jackson was black and Blake insisted he was white. After I thought about it - he did look white - so I went on a hunt for a silver glove. I had no luck but, I found this gold one. I then bought a wig , a black felt hat, rolled up his jeans to show his white socks and he wore a black jacket. When I heard Michael Jackson had died, I went on a hunt for the Halloween pictures. I remember the days when Michael Jackson music blasted from Blake's room.

Looking Good

So far, today, is another good day. I went to Dunkin Donuts and got Scott and I both iced lattes. Actually, while I was sitting in line the girl at the window had them already made so I didn't even have to wait : ) I love small town living. We also got a card yesterday from Satellite Beach Firefighters, saying they hoped everything was OK and each of their names signed. I will have to make a special appearance with a Thank You note and some homemade cookies. I heard one of the fire fighters say that remember last time we took him out the door by the pool. It turned out one of the fire fighters I did some fundraiser with 12 years ago.

Scott is wanting rice krispie treats so I am going to try and sneak out to the store to buy the ingredients.

What A Relief

Scott got up today around 3:00. It was a breath of fresh air to see him up , moving around and acting normal. His color looks really good. I got up this morning and made him an egg white, spinach and cheese omelet and biscuits - Pillsbury helped me out with the biscuits. I then poured him a large glass of Orange Juice - watered down just the way he likes it - yuck!! I guess after breakfast I expected him to jump out of bed but, I guess his body wasn't feeling what I was feeling : (
It was a scary time for both of us and I am glad it was not as serious as we thought it was. Dr. Nick will adjust his Interferon injection and hopefully next week will be smooth sailing .

Round 2

Scott was rushed to the hospital this morning. He woke up at 3:00 am He couldn't sit up, he couldn't stand, he was lethargic, sweating and clammy. I phoned 911 and followed to the hospital. My biggest fear was that we were right where we were 2 months ago. I was trying to be strong but, when I walked into the ER everything hit me. I had tears streaming down my face as I apologized to Scott. When the nurse asked me if I was OK I said yes it's just bad memories. When he pulled up Scott's patient chart - he understood. I felt so much better when Michelle showed up. I did feel bad because she was at the hospital and then she had to work by herself. They gave Scott phergan and morphine for his headache, they did a CT scan. The CT scan came back with significant tumor but, improved from the post op on 4/24. To be honest, it was not the news I was expecting.

I BBM Dr. Nick and he thinks it could have been a combination of the low cell count, the Interferon and physical therapy. So he is going to adjust the dosage on the Interferon and wants Scott to cut his physical therapy on Thursdays.

When we got home I got Scott into the house and put him to bed. Milo laid on Scott's chest and watched him.

White Blood Cell Count Low

Scott has to have an injection if Interferon once a week. We were hoping to get it delivered to our home but, I don't see that happening anytime soon. The last couple of CBC's test have shown Scott's white blood cell count low and today was extremely low. The nurse phoned down to Dr. Nick's office to see if we go ahead with the injection. Unfortunately, there is no way to raise the white blood cell count and if it isn't raised then he can't have chemo.

Weekend Work And Fun

Michelle and I took Scott to Yellow Dog for his birthday.We had yummy burgers and dog bones. Scott got a WII and games for his birthday. We then picked up Skylar from school and I got to meet her teacher. It seemed so odd her at school but, it was nice to see the interactions with her and other kids. Skylar went swimming and Scott and I watched , we were both so stuffed from lunch.







I









Saturday I got up cleaned out both our trucks, vacuumed and washed them and put the Scott's sun shade back in his truck. Scott and I were waiting on a POD to be delivered so I could load things from the garage to the POD. Our friend Joe had stopped by to help me but, the POD wasn't being delivered until about 3:00. I was so dizzy and tired when the POD arrived I decided to put off loading it until Sunday. Scott and I figured out Saturday evening that our air conditioner was not working properly. With the evening getting hotter Scott, Milo and myself were all grumpy.

I woke up this morning went to Dunkin Donuts to get Scott and I coffee, went to Lowe's to buy a stand up portable air conditioner so we wouldn't be so miserable and Joe was coming over at 8:00 to help unload the garage. By the time I had gotten home with the air conditioner Scott had broken out in hives - from the heat?? I gave him liquid Benedryl and headed to the garage. Joe and I had emptied the garage and removed the homemade cabinets by 12:00. We went inside to cool off and Scott was pretty out of it from the Benedryl. So I moved the air conditioner to the bedroom and he slept for hours. I finished the laundry and although I had so much to do it was why to hot. So we spent the rest of the weekend held in our bedroom.

I felt like I got allot done but, I still had so much to do.

Happy Birthday

HAPPY BIRTHDAY, BABY

Celebrating your birthday means so much more to me than just another birthday. It means we have made it to another milestone. You make "life" worth celebrating. No matter what life throws your way - you roll with the punches. Non intentionally you touch so many lives. You have given more to life than what you have received.You light up a room with your presence. You are the most amazing person I know and I am so glad you are my husband.
May all your wishes come true
All my love to the love of my life

Happy Early Birthday

This is Michelle and I wanted to post something to Scott for his birthday while Dalana was not around. It worked out great because she is off this morning bringing Scott to his doctors appt. and the computer at work saved her password-thanks Dalana.

Scott I love you very much. This past couple of month have been very difficult for me as I know they have been for you. I really thought for a split second that I was going to loose my brother. I know it may be selfish to say but I don't know what I would have done if I would have. I thank God everyday for keeping you here with not only me but everyone else that loves you. You are one of the most important people in my life and always will be. I look forward to not only celebrating this birthday with you but many many more.

Some Many Things

Last week Scott had a doctors appointment everyday. My mom came up on Friday, we had a garage sale Saturday to get rid of unwanted and useless junk in the garage. My mom cleaned my house for me on Sunday -Thanks Mom. I always feel so guilty when she comes over and cleans.
Scott felt green on Sunday but, I think it is because he had to much caffeine. I asked him to please start the juices and water again and he seem to feel allot better.

This week is just as crazy. The weekly injections that Scott is suppose to get haven't been delivered to the house, so he needs to be in Orlando at 7:30 am for an injection that takes a second. I am hoping that we don't have to drive to Orlando every week. Sea Pines picked him up for his physical therapy and brought him back home. I think this is going to work out better.

Friday is Scott's Birthday and we decided on The Yellow Dog for lunch. Skylar wants us to pick her up from school and then we will have Cold Stone Cupcakes. I am to look for a unicorn per Skylar for pappy's birthday.

We are having Garage Teck redo the garage so Scott is having a Pod dropped for me Monday so I can get everything out of the garage. It will take them 2 days to do the walls and the floor. I am excited for Scott he has wanted the garage done for years now. Because Scott's I also want to find a stand up air conditioner so it will be cool when Scott is working out.

I have made reservations for Scott, Skylar and I at Disney over the July 4th holiday. I am in the process of making character dining reservations. Then Scott will have his 2nd round of chemo on the 9th. We were going to hangout at home but, I think this break will be nice. Scott still has his wheelchair so he can sit back and enjoy the ride.

I am also in the process of designing Skylar's birthday party. She choose Wizard of Oz theme for this years party. I have a great idea for her invitation. I can't wait to get the supplies in to see if it is going to work.

Michelle and I are also planning to set up a table at Founders Day in Satellite Beach to display a couple of our parties.

Blake is trying to get a Compassionate Reassignment , allowing him to be closer to home. If it the reassignment doesn't go through then he will be leaving for Iraq in October. He will come home for a short leave in September. Leave in October for Iraq , where he will be gone for 15 months.

Scott has chemo treatments the day before Thanksgiving and the day before Christmas Eve , so our plans to be away for the holiday's are going to be per how Scott feels.