100%

Scott's back to his self. He has full strength in his left arm and leg. Dr. Nick has began decreasing his Dexamethasone. His last dose will be Friday. He will then go for a level check and hopefully start his chemo.

Toxic

I had phoned home yesterday to see how Scott. When he told me he was a little better I thought I would quick update the blog ("Making Progress")Any small change is progress. When I got home Scott could barely function. I urged him to call Dr. Nick to see if we should have seen a difference by now. It turns out we should. So Dr. Nick again reviewed the scans looking for a stroke, bleeding or change in the tumor. Confused they looked at Scott's bloodwork that was taken on Friday. Conclusion is his Dilantin level is high, making him toxic. He is to decrease his Dilantin by one, reduce his Topomax and have his blood drawn on Friday. We will re-evaluate and go from there. Scott is so frustrated. We just have to wait for his levels to decrease from 20 to 13-14.

Making Progress

Scott seems to have a little more strength in his arm and hand. Hopefully the Dexamethasone is doing it's job. He still seems really fatigued which is one of the symptoms with the swelling. I'm trying to help out and get things done before my shoulder surgery on Friday. It seems like there just isn't enough time.

MRI Update

Scott had his MRI yesterday @ 12:00 because it was early we were able to get the films and run them to Orlando. Dr. Nick didn't see any difference in the tumor, there was no bleeding & no sign of a stroke- Great News - Dr. Nick thinks there maybe some underline swelling in the tumor area that's causing Scott's extreme fatigue and his left side weakness. Dr. Nick has stopped the Temedor (Chemo) until Scott gets back on track neurologically. He has prescribed Dexamethasone - an anti-inflammatory to decrease the swelling. The swelling maybe post seizure from that last seizure he experienced while doing the seizure study in December.
Dr. Nick has also thinks it is a good idea that Scott - he is to weak to make any sudden moves. Thank you all for the prayers.

Emergency MRI

We saw Dr.Nick today. Scott has been having problems with weakness on his left side. The past couple of weeks has gotten worse. His left leg drags and his left arm hangs. Dr. Nick has ordered an emergency MRI for tomorrow and we will take the new film and 2 previous films at 8:00 a.m. to the hospital in Celebration. A few of the possibilities are bleeding, swelling in the tumor or he may have had a small stroke.We will not know until Friday morning after our appt. Dr. Nick has not ordered the next round of chemo until he sees the new MRI scan. Please say a prayer for Scott.

A "Berry" Good Weekend

We started our weekend with taking Skylar to the Strawberry Fest. Our Saturday morning began with strawberry pancakes. Skylar found a new game. She thought it would be funny to walk to the end of the isle, cross over to the next isle (I was watching ever move see made) she was saying mommy, mommy , I lost. This poor lady kept pointing me out to Skylar but Skylar would never look at me because she was lost and that would mean the game would be over. She would cross over to the isle I was in and would run to me with her arms open yelling mommy, mommy I was lost. This game went on for a good 20 minutes but, the poor women who really thought Skylar was lost never caught on that it was a game.
They had huge blow up slides for the kids. Each slide was diffrent. Skylar liked the one with the
fishes that looked like Nemo. She would climb to the top and superman slide down. One of the
slides she had a hard time climbing the ladder so Michelle thought she needed help. The
beginning of this obstacle the kids had to dive through a tire. Poor Michelle dove through the
tire on her face. Then she could not decide if she should go over the obstacle or under - she
finally made it ti Skylar to help her climb the ladder so she could slide down the back side.
We then headed to the Home Depot kids workshop tent. Skylar had a choice of a birdhouse or butterfly house. She chose the birdhouse. So Scott and I helped her build her first birdhouse.
We then found the balloon man. He made a parrot and told Skylar to put out her finger so he could sit it on her finger. Skylar wanted to go back to the slides -where she spent most of her time. She was exhausted and fell asleep on the way home. When she woke up I think she thought it was a new day because she asked me what we were going to do today.I have posted a slide show of the day here.
Strawberry Fest

Sunday Scott and I went to see Uncle Sam and Aunt Alice in Daytona. We drove around looked at bikes ( it was the begining of bike week) and then did our yearly lunch at Red Lobster with them. Year to year they never seem to change. What a couple of great people.